Tag Archives: department of health

Eric Avebury

Eric Avebury writes: Rare disease Day – a new report on care co-ordinators

By Eric Avebury | Wed 27th February 2013 - 11:17 am

rare-disease-day-logoTomorrow is International Rare Diseases Day, and I shall be asking in the Lords what contribution the Government are providing for the International Rare Diseases Research Consortium.

The EU defines a rare disease as one that affects no more than 5 in every 10,000 persons. But since between 6,000 and 8,000 such diseases have been identified, about 3.5  million patients are affected in the UK. Three quarters of these diseases can affect children, and nearly a third of the youngest patients die before their fifth birthday.

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  • User AvatarMBoy 18th May - 4:33pm
    That website has been called "UKIP@Home" for over 5 years...long before the current convulsions in the Tory party caused even the saner ones to go...
  • User Avatarmickft 18th May - 4:30pm
    Well said Roger. A great statement of a Liberal approach to this difficult issue.
  • User AvatarWilliam Hobhouse 18th May - 4:01pm
    Having read Nick's full article on Conservative Home, and the comments, I cannot but notice the gaping difference between how the LDV and Con Home...
  • User AvatarAndi Ali 18th May - 3:55pm
    I agreed with Alex Salmond too - and that has to be a first.
  • User AvatarEddie Sammon 18th May - 3:45pm
    Damn I hate being two post Eddie, but I want to add that private schools being faith based is fine, but I don't think it...