Tag Archives: rare diseases

Eric Avebury writes: Rare disease Day – a new report on care co-ordinators

rare-disease-day-logoTomorrow is International Rare Diseases Day, and I shall be asking in the Lords what contribution the Government are providing for the International Rare Diseases Research Consortium.

The EU defines a rare disease as one that affects no more than 5 in every 10,000 persons. But since between 6,000 and 8,000 such diseases have been identified, about 3.5  million patients are affected in the UK. Three quarters of these diseases can affect children, and nearly a third of the youngest patients die before their fifth birthday.

Posted in News | Also tagged | 2 Comments
Advert



Recent Comments

  • User AvatarRichard Dean 20th Dec - 12:44pm
    Five words which make no sense!
  • User AvatarJohnTilley 20th Dec - 12:41pm
    SpookyBird 19th Dec '14 - 6:37pm You asked about sources on the targetting of teenagers with nicotine products in some states in the USA. My...
  • User Avatardavid 20th Dec - 12:38pm
    The claim that the EU is good for us was tested in the Clegg-Farage debates. Clegg's 'facts' were transparent nonsense.
  • User AvatarJudy Abel 20th Dec - 12:19pm
    I remember a constituent we worked with having to get two buses in a wheelchair to get to his benefits assessment. Have we lost the...
  • User AvatarJohnTilley 20th Dec - 12:11pm
    Robin McGhee 20th Dec '14 - 9:53am " Still no evidence has been presented to show these proposals would discourage people from working in any...
  • User AvatarLiberal Al 20th Dec - 12:09pm
    This is a fantastic piece: especially as it actually understands that the debate on the European Union is more to do with identity than economics....
Sat 20th Dec 2014
Sat 3rd Jan 2015
Wed 14th Jan 2015
Thu 15th Jan 2015
Fri 16th Jan 2015