Tag Archives: rare diseases

Eric Avebury writes: Rare disease Day – a new report on care co-ordinators

rare-disease-day-logoTomorrow is International Rare Diseases Day, and I shall be asking in the Lords what contribution the Government are providing for the International Rare Diseases Research Consortium.

The EU defines a rare disease as one that affects no more than 5 in every 10,000 persons. But since between 6,000 and 8,000 such diseases have been identified, about 3.5  million patients are affected in the UK. Three quarters of these diseases can affect children, and nearly a third of the youngest patients die before their fifth birthday.

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  • User AvatarStephen Donnelly 27th May - 8:39pm
    Whilst no doubt some of the detail is debatable, your direction of travel is spot on. We need to move away from a party that...
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    Matthew Huntbach "It’s not just down to luck, unless by “luck” you include being lucky with the parents you had." I don't agree most is...
  • User AvatarCharles Hamilton 27th May - 8:37pm
    @Joe Thorpe - given most of the electorate voted against the conservatives, he is more than within his rights to speak up. In fact it...
  • User AvatarLittle Jackie Paper 27th May - 8:36pm
    'What I believe is that if 16- and 17-year-olds were enfranchised, then we would interest ourselves in politics and we would open our eyes. I...
  • User AvatarMavarine Du-Marie 27th May - 8:36pm
    @Joe, how your many more fingers got so far we'd never know, for with just the few fingers, we can point you in the right...
  • User Avatarbob sayer 27th May - 8:32pm
    Joe:you mean the 24% of the electorate who voted Conservative with many not caring what the policies were but frightened of a Lab/SNP coalition
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