Tag Archives: rare diseases

Eric Avebury writes: Rare disease Day – a new report on care co-ordinators

rare-disease-day-logoTomorrow is International Rare Diseases Day, and I shall be asking in the Lords what contribution the Government are providing for the International Rare Diseases Research Consortium.

The EU defines a rare disease as one that affects no more than 5 in every 10,000 persons. But since between 6,000 and 8,000 such diseases have been identified, about 3.5  million patients are affected in the UK. Three quarters of these diseases can affect children, and nearly a third of the youngest patients die before their fifth birthday.

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  • User AvatarMatthew Huntbach 17th Apr - 4:25pm
    Denis This is far from the “divisive schooling, segregating children along religious grounds” feared by Graham Martin-Royle above. If tempted by the quite different approach...
  • User AvatarMatt (Bristol) 17th Apr - 4:01pm
    Hmm, maybe we could learn from this, start a separatist movement for SouthWest England and threaten to secede from the UK, we too will get...
  • User AvatarPaul in Twickenham 17th Apr - 3:52pm
    I always liked the story about how Clement Attlee was approached by a BBC reporter who said "Prime minister, do you have anything to say...
  • User AvatarChris Manners 17th Apr - 3:36pm
    ", why should I tell people what they can spend their money on? That’s an important issue that’s been highlighted" Right, so no other economic...
  • User AvatarChris Manners 17th Apr - 3:28pm
    This clown is on the left of your party?
  • User AvatarPeter Watson 17th Apr - 3:18pm
    @John Leech I stalled at the first sentence. What exactly do you mean by "the rebirth of localism in 2010"?