Tag Archives: clare steel

“I can’t have her starving to death” – Carer Clare describes energy bill terror

We’ve mentioned several times before on this site about the impact of rising fuel bills on disabled people. It’s not just that if you are less mobile you need more heating, it’s about charging up wheelchairs, and running life sustaining equipment like feeding pumps.

Clare Steel* is a Labour Councillor in West Dunbartonshire. She cares for her 15 year old daughter Katie, who has complex medical conditions which mean she can’t walk, talk or swallow.

Katie depends on nine separate pieces of electrical equipment to keep her alive and make sure she can get washed and go up and down the stairs and move around and communicate- the very basic things required for human dignity.

Yesterday Clare spoke to Radio Scotland about her absolute terror about how she is going to pay the bills after 1st October. Right now I want to bundle up every single Conservative MP and put them in a room and make them listen to her. And I also want every person in the country to hear it so that they can understand the reality carers and disabled people are facing. You can listen here from about 20 minutes in.

Clare talked about the sort of equipment Katie has:

“Katie requires 24 hours care. That involves lots of medical equipment. Because Katie can’t eat, she has a pump which pumps high calorie milk into her bowel for 16 hours a day.”

She also has an 18 stone electric wheelchair which has a massive energy gobbling battery pack to get around as she can’t walk, a chairlift to get her up the stairs to her bed, an electric bath chair so that she can get in and out of the bath safely, a special bed and aids which enable her to communicate.

Every piece of equipment in Katie’s life allows Katie to be alive and function daily. I don’t have a choice about having these on charge constantly.

Clare was in tears when she asked:

How am I going to be able to keep Katie alive day in day out and not worry about how I am going to pay my energy bills. It’s just the reality. My worry is paying my electricity bill to have Katie’s machines. That’s not even including the cost of heat.

We don’t have options. There is no options. I was looking at a bath chair online which I could blow up so I might not have to use the bath chair, but that is only one thing. Katie’s wheelchair is 18 stone with a massive battery pack. Do I tell her she can’t have independence?

She needs her suction machine. I can’t have her choking to death. She needs her feeding pump, I can’t have her starving to death.

Posted in News | Also tagged , , , and | 8 Comments
Advert



Recent Comments

  • theakes
    Excellent question yesterday from Christine Jardine over the VAT on Private Schools and the negative effect it appears to be having in Edinburgh and within the ...
  • Paul Barker
    Thanks for a very useful article. Something like a quarter of 2024 conservative Voters are likely to die before the next General Election - that shift on its ...
  • David Le Grice
    Why the hell do we only get two questions? We got more than half the seats and votes that the Tories got, if they get a whopping six then we should get at least...
  • Peter Davies
    @Paul Yes. Most organised areas do tallying....
  • Peter Davies
    "even in London we have no councillors (and so no councillor tithes) in 19 of the 32 Boroughs" it's not really 'even'. London Boroughs have the highest proporti...