Tag Archives: attendance allowance

Attendance Allowance should not stop at the hospital door

My grandfather, or as I affectionately call him, Bampa, is currently in the hospital awaiting urgent heart treatment.

It’s frightening enough on its own. The hospital is 40 minutes away, so I’m relying on phone calls during the day to keep up to date on my bampa, get on with my work day, and keep my family members updated on what the hospital tells me; suffice it to say, it’s a lot.

And then, recently, my mum had a letter. My mum has been told that, due to how long my bampa has been in the hospital, if he is still there by Sunday, 26 April, his Attendance Allowance will stop.

Now, we’re not expecting him to be in there that long, and he should (we hope) be home by the end of the week. But what kind of state treats its citizens like this? A man who has worked his entire life, never complained about the cards he was dealt in life, having lost his wife only a few months ago, is now in the hospital, and the response from the state is, “Yeah, sorry about that, but if you’re there any longer, we’ll punish you.”

It’s one of those moments when the welfare state shows you why, once again, it is not fit for purpose. What should be a humane system built around the realities of illness, frailty and care is just an administrative machine that is constantly scanning for the point at which it decides support no longer counts.

Attendance Allowance is designed to support older people with the extra costs of disability and ill health. It can range from £76.70 to £114.60 per week. But if someone has the misfortune of being ill and being in hospital for 28 days, their support is suspended, and only resumes when they’re back home.

While this makes sense to Whitehall, considering they fund the hospital stay and therefore the benefit is not needed, life is not lived on a spreadsheet.

Extra pressures do not disappear when someone is in the hospital. Families need to travel, buy essentials for the person in the hospital, spend money on food, parking and transport, manage calls and paperwork, chase updates, prepare for discharge, and carry the emotional and practical stresses of caring. Depending on the treatment, the person coming home from the hospital will need more support than before, not less.

This is what makes the rule on Attendance Allowance so cruel. It operates on a fantasy version of illness, one in which the hospital somehow automatically removes the burdens of care, rather than intensifying them.

The impact on Attendance Allowance has a knock-on effect on the carer’s allowance, too. If the Attendance Allowance stops, the linked Carer’s Allowance also stops, triggering a second financial impact on the same family. This is a direct penalty on ill health and care itself, delivered by a system supposedly in place to support both.

Posted in Op-eds | Also tagged | 3 Comments

Discrepancies in access to adapted vehicles leaves some people housebound

Yesterday Adrian Ashton raised some questions about Carer’s Allowance.

Today I want to focus on another anomaly that affects people with disabilities and their carers, relating to access to adapted vehicles.

People of working age can apply for Personal Independence Payment (PIP). We know that the eligibility criteria for PIP is controversially under scrutiny by the Government at the moment but that is not my issue in this post. PIP is not means tested, is tax free and is meant to cover the additional expenses that a person may have because of their disability. The PIP Daily Living Allowance is paid at one of two levels depending on the needs of the applicants. The lower level is £73.90 pw and the higher level is £110.40 pw.

When someone on PIP reaches retirement age they continue to receive PIP. However if someone becomes disabled for the first time after reaching retirement age they are instead paid Attendance Allowance. Now Attendance Allowance is also not means tested, is tax free and is paid at the same rates as the PIP Daily Living Allowance.

So what’s the problem? Well it is crucially something that I have not yet mentioned. People receiving PIP get a further top-up known as the Mobility Allowance. This is paid at £29.90 at the lower level and £77.05 at the higher level, and the higher level opens access to the Motability scheme. Under the Motability scheme the higher Mobility Allowance can be used to lease a customised vehicle.

The key thing to note is that people on Attendance Allowance do not receive the Mobility Allowance so cannot access the Motability Scheme.

For example, consider two people who each suffered major injuries in a car accident which left them using a wheelchair with considerable care needs. The first was 64 at the time and was eligible for higher level PIP and could lease a wheelchair accessible vehicle through Motability at no extra cost to themselves. They can continue with PIP and Motability into old age. The second was 68 at the time of the accident and became eligible for Attendance Allowance, but did not get a vehicle and did not get an allowance towards one.

This anomaly affects fulltime carers as well as people with disabilities. If the cared-for person falls into the second category and cannot be left alone then the carer is also stuck at home without a suitable vehicle.

Posted in Op-eds | Also tagged and | 3 Comments
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