Tag Archives: ME/CFS

The Voice

John Milne MP and cross party parliamentarians write to Wes Streeting with concerns about the ME/CFS strategy

By The Voice | Sat 20th September 2025 - 11:56 am

In a joint letter to Health Secretary Wes Streeting under a title “Concerns regarding ME/CFS Strategy in the Final Delivery Plan”, John Milne MP has questioned “the absence of strategic approach to biomedical research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) as part of the Final Delivery Plan”.

John is lead signatory, joined by MP Jo Platt, All-Party Parliamentary Group on ME chair, plus his co-MPs and Huse of Lords members who are Champions for Action for ME.

Here is the text of the letter:

Dear Wes

Concerns regarding ME/CFS Strategy in the Final Delivery Plan

As Members of Parliament and Champions for Action for ME, we are writing to express our collective concern about the absence of strategic approach to biomedical research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) as part of the Final Delivery Plan – ME/CFS are debilitating and affect an estimated 1.3 million people in the UK.

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The Voice

All 72 LibDem MPs sign letter to Wes Streeting expressing concerns about the delivery plan for ME/CFS

By The Voice | Tue 13th May 2025 - 2:28 pm

Tessa Munt MP has organised a letter from all 72 LibDem MPs to Wes Streeting MP, Secretary of State for Health and Social Care, expressing concern about the viability of the forthcoming delivery plan for combatting ME/CFS. Here is the text of the letter (see also photo above):

As World ME Day on Monday 12™ May approaches, we — all 72 LibDem MPs — write to raise our concern about a lack of funding for the forthcoming Final Delivery Plan for ME/CFS and to request a meeting to discuss this further.

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Paul Walter

Government needs to fund plan for ME, CFS and Long Covid patients #fundtheplan

By Paul Walter | Thu 27th February 2025 - 3:00 pm

The government is about to release their new NHS plan ‘rethinking ME’ but absurdly it’s not actually coming with any funds attached to it, despite the fact there is now irrefutable evidence of its biological existence and the rapidly increasing number of patients, due to the number of Covid long sufferers who meet the diagnostic criteria. Many patients have been let down for decades over the lack of funding, not to mention being treated awfully over the years by the medical community.

The funding for ME/CFS/Long Covid patients is about £40 per patient per annum, one of the lowest of any disease despite the most severe patients having a very poor quality of life compared to patients with several other illnesses.

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Paul Walter

Government announces new plan to help those impacted by ME/CFS

By Paul Walter | Tue 3rd October 2023 - 4:27 pm

There’s been a recent government announcement about ME/CFS which deserves some attention.

As the government says:

Plans to help improve the lives of people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been outlined by the government today and a consultation launched on how best to deliver the plan.

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