Author Archives: Jenny Marr

Why we need good Cancer care

I’m grateful to see the motion on Cancer care passed at Conference  but  I am sorry to my core that it had to be written in the first place.

I’m coming from a slightly different place than you might expect, partly because that place is Scotland and I know what is called for wouldn’t apply, but I wanted to tell a story which whilst does not have a happy ending, it had a happy-ish journey.

My mum died of cancer just over 18 months ago. She was diagnosed in December, and left us in the following July.

There wasn’t much time for the system not to work for her.

I would be lying if I said there were things in terms of her care I wouldn’t change, but I don’t want the perfect to be the enemy of the good, and I’m lucky enough to be able to speak to the positives of our experience.

She spent a lot of her time in a specialist palliative care unit. Somewhere which was welcoming and spacious, with the most beautiful garden to look out on and spend time in.

If you were to look up kindness or heart or positivity in the dictionary there you would see all of the doctors and nurses we encountered.

They were always there. We never had to worry about that. We laughed and we shared fruit the children of one of the nurses had picked earlier that day. They genuinely brought us a lot of joy.

Posted in Op-eds | Tagged , , and | 4 Comments

Reprise: Where is the love?

This article first appeared on 15 June 2016, in the wake of the Orlando massacre. It’s worth reading again today after another week full of avoidable tragedy.

One of the first things I tell people about myself, really as a warning, is that I cry a lot. At good news, bad news, RSPA appeals. Even a particularly nostalgic Hovis advert will do it.

Since Orlando, I’ve cried on public transport. In the office. In a car park. At home. In response to eye witness accounts, doctor’s stories, and politician’s reactions. I suppose like many I’ve been grieving. But what with it this time is a physical reaction. A need to reach out my arms and hug the relatives, the police, the victims. To run and be there, as if that would somehow help. A need to shout out that I’m a human too, that I get it, that though I’m from the other side of the planet we feel it just the same.

Of course that’s probably no use at all, I don’t know. But on a practical level, what can we do? There are crowd funder pages to help the victims families, we could attend vigils, continue to live our lives.

Though for me, when I’m sitting on a train trying desperately not to hug the stranger sitting next to me, I need to do more.

My mind wandered to the mindset of the shooter, and all those committing these atrocities. And I thought, have they ever been in love? Sometimes when my mind wanders I think about what would happen if the person I love fell under a bus. Though not likely but they are incredibly clumsy. And that single thought will make me cry every time. I’m so lucky to feel this, but many people don’t know what that’s like.

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Where is the love?

One of the first things I tell people about myself, really as a warning, is that I cry a lot. At good news, bad news, RSPA appeals. Even a particularly nostalgic Hovis advert will do it.

Since Orlando, I’ve cried on public transport. In the office. In a car park. At home. In response to eye witness accounts, doctor’s stories, and politician’s reactions. I suppose like many I’ve been grieving. But what with it this time is a physical reaction. A need to reach out my arms and hug the relatives, the police, the victims. To run and be there, as if that would somehow help. A need to shout out that I’m a human too, that I get it, that though I’m from the other side of the planet we feel it just the same.

Of course that’s probably no use at all, I don’t know. But on a practical level, what can we do? There are crowd funder pages to help the victims families, we could attend vigils, continue to live our lives.

Though for me, when I’m sitting on a train trying desperately not to hug the stranger sitting next to me, I need to do more.

My mind wandered to the mindset of the shooter, and all those committing these atrocities. And I thought, have they ever been in love? Sometimes when my mind wanders I think about what would happen if the person I love fell under a bus. Though not likely but they are incredibly clumsy. And that single thought will make me cry every time. I’m so lucky to feel this, but many people don’t know what that’s like.

Posted in Op-eds | Tagged | 4 Comments
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