Tag Archives: health

The Voice

Ed Davey’s speech to Conference: Lib Dems can defeat this awful Government

By The Voice | Sun 13th March 2022 - 12:47 pm

A powerful selection on Ukraine, a call for Priti Patel to be sacked, a celebration of Chesham and Amersham and North Shropshire, a tribute to Lib Dem by-election stalwart Erlend Watson, a decent gag about Dick Turpin, an evisceration of the Tories over sleaze and partygate (including a call for a public enquiry into Boris Johnson’s relationship with Lebvedev) and an attack on Tory MPs for keeping Boris Johnson in power, setting out what the Lib Dems offer for health and education and a look forward to the local government elections in May…all this and more delivered by Ed Davey to Lib Dem members gathered in York.

 

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Chris Perry

A whole systems approach to solving the health and social care crisis

By Chris Perry | Mon 14th February 2022 - 9:23 am

The Health and Social Care Bill currently in the House of Lords is intended to:

  1. sort out the under-funding of social care;
  2. remove the need for people to sell their houses to pay for their care;
  3. promote joined-up service delivery;
  4. replace the competitive model with a collaborative one.

Sadly, as I wrote here, it appears to be a quick fix component level response to a whole systems problem which will simply “kick the problem on for a few more years”. There is little point putting more and more money into the first aid camp at the bottom of the cliff without building a fence at the top.

The cap on the amount which can be spent on care home fees will favour the rich in that people who do not have sufficient savings will still have to sell their house to pay for their care.

The “Integrated Care Systems” and “Integrated Care Partnerships” will be very costly and appear more concerned with preserving:

  • the current configuration of local authorities and NHS Trusts, and;
  • the purchaser / provider split and commissioning;

than they do the provision of integrated care.

Successive Governments have tried to get health, social services, police, education and housing to work together, but none has grasped the nettle of different geographical areas, different funding streams and different lines of accountability, which have been the main impediments.

Since the 1990 National Health Service and Community Care Act the “contract culture” has led to:

  1. a “minding” rather than a “mending” service with social workers increasingly used to assess the eligibility to specific services rather than using relationship and therapeutic counselling to resolve problems;
  2. further fragmentation with different components of a “package of care” bought from different providers, and;
  3. “self-funders” (a dreadful term) being waived away denying them an “independent verification of their wishes” and their families the help and support they need.

There is a wealth of empirical evidence on the “social determinates of health” which have demonstrated the correlation between income and demand upon the NHS.

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Jane Alliston

Why waiting times matter in mental health

By Jane Alliston | Thu 9th December 2021 - 4:00 pm

18 weeks. That’s the target waiting time, often missed, from referral to being seen.  From now in deepest darkest December to  Mid April, what an age that is. It’s hard on adults. Arguably harder when that’s how long some of our most distressed young people have to wait for support. 18 weeks or  4 months is a very long time if you are 13. If you are being bullied, if life is becoming more complex and you feel ill equipped to cope. It’s more than a school term, it’s too long and that’s the best on offer. Too often, currently for  1600  children,  the wait was over a year. Let’s be realistic, any child that has asked for help and waits over a year will undoubtedly experience that response as  No, there is no help.

The last 18 months has seen very few of us untouched by the pressures of the pandemic and the impact on the mental health of both adults and the young has been significant. From a self-reported rising anxiety across the population generally to increased rates of disordered eating and self harming amongst young people.  

In my work as Counsellor I have seen this in the increased waiting lists for our third sector services, parents seeking private services for children to avoid waiting times that seem to be never ending and referrals to online services. Even before Covid we were in trouble. One young person I worked with, told me what she’d learnt from 5 years bouncing between referrals from her GP  to the private sector, to CAMHS and to online services as she now transitioned to adult services.

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Hannah Bettsworth

European health policy and the Conference on the Future of Europe

By Hannah Bettsworth | Mon 25th October 2021 - 12:53 pm

On the 23rd of October, the Liberal Democrats Abroad and the Liberal Democrats European Group held a discussion session with Irish Senator Timmy Dooley about the Alliance of Liberals and Democrats for Europe’s contribution to the Conference on the Future of Europe. Mr Dooley underlined the importance of hearing British views on Europe’s future, to help learn the lessons from Brexit, meet citizens’ expectations, and shape the EU into an organisation that the British people would be excited to rejoin.

In health, he mentioned the disillusionment caused by an initially slow response to vaccine procurement. Things have vastly improved since then, although, this is an important opportunity to take stock of what Europe does in health – and what else we might like it to do.

Firstly, on pharmaceuticals. Manufacturers can apply to the European Medicines Agency for EU-wide marketing authorisation for their products, but that doesn’t  automatically mean they’ll be available across the EU. Medicine pricing and reimbursement decisions are up to the Member States of the EU. Some have joined together to evaluate the impact of these newly available medicines and decide pricing, such as the Beneluxa group. Is there more Europe can do in this area? Should such coalitions expand to include other EU members – and could the UK get involved?

Europe also offers manufacturers incentives, based on market exclusivity for their new product for a period of time before competing medicines can come into play. The European Commission is examining changes to the rules, which could make these incentives conditional on EU-wide product availability or meeting health needs not yet addressed by existing products. At the same time, it seeks to make the process of getting market authorisation more efficient and less expensive, while maintaining high standards. Should it reform these incentives to influence manufacturers’ behaviour, and if so, how can the EU balance those two issues in a way that works for manufacturers and patients?

The Commission is also reviewing the rules on children’s and rare disease medicines, for similar reasons – how can we incentivise these treatments and make sure patients can access them?

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Caron Lindsay

Dismissing Dysmenorrhea

By Caron Lindsay | Thu 30th September 2021 - 9:01 pm

So, if you have never had bad period pain, how can I convince you that it really is horrible?

You know what bad toothache can be like?

That sort of immersive pain experience that completely consumes you.

There is very little you can do to get relief.  Painkillers barely take the edge off.

Concentrating on anything is virtually impossible.

Thankfully, bad toothache doesn’t come along too often.

But period pain, which is kind of like toothache in the abdomen comes along roughly once a month. I know people who are in absolute agony for a couple of days.

On the Hysteria podcast last week, former White House aide Alyssa Mastramonaco described her lifelong search for the optimum combination of methods of relief for her horrible monthly pain.

When I was a teenager, I used to get such bad pain that I would be sick and sometimes I was at the point of passing out.

This is seriously nasty. And research into alleviating Dysmenorrhea, to give it its medical name, has been relatively sparse and not very well funded.

I was once sent home from school because it was so bad, but I never did that again after getting warned within an inch of my life by my mother.

I was lucky that it got a bit better when I got into my twenties, but some people suffer all the way through their menstruating years.

If you are one of the unlucky ones, you can have 40 years of monthly hell. You have to go through that pain almost 500 times.

It is definitely frowned upon to take time off work for it, although 73% of people surveyed by Bloody Good Period, reported in Glamour Magazine said they had struggled at work because of their periods.

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NewsHound

LibLInk: Christine Jardine on the perfect storm that shows up our bad Governments

By NewsHound | Wed 29th September 2021 - 9:21 am

In her Scotsman column this week, Christine Jardine looks at the “perfect storm” of food and fuel shortages, health service crisis, Covid and high energy prices we are facing at the moment. She argues that the show how bad both UK and Scottish Governments are – and we shouldn’t let them away with blaming Covid and Brexit for our current travails. They were failing long before then:

It must be tempting for those responsible for the well-being of the NHS to blame its current predicament on all the other elements of the storm. That somehow the crisis which has necessitated calling in the Armed Forces to support our ambulance service is purely the result of the circumstances we find ourselves in. That they can look to the example of our energy industry which is defending itself with evidence of an unusual lack of wind and solar resources and a fire on an interconnector.

But that would be to ignore the reality which we have all experienced in different ways over recent, pre-pandemic years. The damage done by the increasing centralisation of public services and decision-making in Scotland.

On top of everything else, the FLu jag programme has been a nightmare this year.

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The Voice

Tories backtracking over new Powys Hospitals shows lack of honesty with voters

By The Voice | Mon 3rd May 2021 - 9:25 am

The admission by the Conservatives that their manifesto pledge to build two new hospitals in Powys won’t be fulfilled has been described as a disappointing breach of trust by the Liberal Democrats.

The Conservative manifesto pledges on both the inside cover and on page two that they will build “five new hospitals.” However Welsh Conservatives have now admitted that only two new hospitals will be built, neither of which will be in Powys and instead that existing hospitals in Newtown and Llandrindod will be upgraded.

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Caron Lindsay

Rennie: Tackle drug addiction with compassion and treatment, not imprisonment

By Caron Lindsay | Tue 20th April 2021 - 12:13 pm

Liberal Democrats care about people being able to fulfil their potential and getting the care and support they need to recover from illness and addiction. That’s why our Scottish manifesto highlights the need to take a public health approach to addiction. Scotland has the highest drug deaths rate in Europe, something which became very real to a friend of mine recently when her son died after taking street valium. Typically, she thought of others before herself and allowed the BBC to film his funeral.

Willie Rennie said today that the next Scottish Government will only end the drug deaths crisis through compassion and health treatment, not prosecution, as he revealed new figures showing 605 people convicted of possession without intent to supply being sent to prison.

Meanwhile, only 108 people received a Drug Treatment and Testing Order during the same three year period (2016/17 to 2018/19).

1264 people died of drug related causes in 2019. Each of them were individuals with talents and skills. Each of them loved and had people loving them. Pretty much 3 people a day lose their lives and each one of them, with the right intervention, could still be alive today.

So the Scottish Liberal Democrats, looking to the best evidence, has the following measures to tackle the harm that drug addiction causes to people and communities that are focused on help and support. The party will:

  • Reduce the misery of drug abuse with compassion and health treatment rather than prosecution.
  • Take radical steps with the prosecution authorities and the Lord Advocate to help establish heroin assisted treatment and safe consumption spaces.
  • Establish new specialist Family Drug and Alcohol Commissions to help provide wraparound services and to take a holistic approach to those reported for drug offences, learning from best international practice such as that in Portugal.
  • Divert people caught in possession of drugs for personal use into education, treatment and recovery, ceasing imprisonment in these circumstances.
  • Protect and enhance drug and alcohol partnership budgets, and adopt the principle that individuals and families shouldn’t have to pay for the care and treatment of those at risk of death from drugs or alcohol.
  • Use emergency housing funding to help people keep their homes and tenancies while they undergo treatment and rehabilitation.

Willie Rennie said:

The SNPs failure was more than just a political failure, it was a failure that cost the lives of hundreds of people.

Not only did the SNP fail to take the necessary action to save lives, they made it worse by cutting the alcohol and drug partnership budgets, surrendering services and expertise.

It was admitted in 2017 that essential drug reforms weren’t pursued because it wasn’t seen as a vote winner. This is political negligence of the highest order.

Scottish Liberal Democrats will put recovery first. We will reduce the misery of drug abuse with compassion and health treatment rather than prosecution. After years of being told no, Scottish Liberal Democrats have just won cross-party agreement for that important principle.

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Katharine Pindar

Build Back Fairer: the new mantra for now

By Katharine Pindar | Thu 17th December 2020 - 4:21 pm

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This title is about health equity issues, however, not building better houses. Professor Sir Michael Marmot, author of the Marmot Review – Health Equity in England Ten Years On which was published in February this year, has led a follow-up study called Build Back Fairer: The Covid-19 Marmot Review.

The new report highlights how inequalities in social-economic conditions before the pandemic contributed to the high and unequal death toll from Covid-19.

The enduring social and economic inequalities in society mean that the health of the public was threatened before and during the pandemic and will be after. Just as we needed better management of the nation’s health during the pandemic, so we need national attention to the causes of health inequalities.

Professor Marmot is as unflattering here about the present state of affairs as he was in his ten-year report. He writes, “Poor management of the pandemic was of a piece with England’s health improvement falling behind that with other rich countries in the decade since 2010”. That, he recalled, was for several reasons including that “the quality of governance and political culture did not give priority to the conditions for good health”, that there was increasing inequality in economic and social conditions, a rise in poverty among families with children, plus a policy of austerity and consequent cuts to funding of public services.

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Caron Lindsay

Munira Wilson gets another PMQ – and calls for removal of “draconian” Coronavirus law

By Caron Lindsay | Sat 3rd October 2020 - 1:46 pm

Some MPs never get to ask the Prime Minister a question at the most hotly contested parliamentary event of any week.

Munira Wilson has been an MP for just 9 months, and has had two opportunities in the path month to ask a question at PMQs.

This week she asked him to work cross-party to get a consensus on the laws and powers around Coronavirus, calling the current measures “draconian.”

His response was as dismissive as you would expect:

We are making sure that everybody in our society gets all the protections they need. I am aware of the easements in the Care Act 2014 that the hon. Lady refers to. It was necessary to put them in temporarily, and we now need to make sure we give everybody the protection that they need. That is what this Government will do.

And here’s a reminder of Munira’s debut at PMQs last month when she took Boris Johnson to task over his government legislating to break international law.

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NewsHound

LibLink: Vince Cable Disbanding Public Health England is the last thing the Government should be doing right now

By NewsHound | Sun 30th August 2020 - 1:28 pm

Writing in the Independent this week, Vince Cable condemned the Government’s decision to shut down Public Health England.

He suggested that it was the scapegoat for the Government’s policy failings before setting out why it is such a bad idea:

Aside from practical questions about who is to deal with other public health issues like obesity and sexual health, the long-term challenge for the new agency and its network of local public health officers is to make Britain better prepared for serious pandemics in future. They must be ready, too, for the more predictable annual rounds of flu, which though they are sufficiently understood to be countered by vaccination still affect 15 per cent of the population, and each year kills 10,000 people in the UK and a quarter to half a million people worldwide.

He talks of the need to look at environmental factors at an international level to limit future pandemics:

But prevention cannot be achieved by any one country working alone when we are considering the complex origins of zoonotic viruses which have jumped species. Blame for Covid is placed on Chinese wet markets and dietary preferences which fits the politically convenient narrative of Chinese culpability. But there are deeper problems.

Some scientists point to the impact of deforestation which is bringing humans and domesticated animals into closer contact with previously unknown species and viruses. As forest cover disappears, the species face mass extinction but the viruses contained in the fauna can strike back. And once new, dangerous, viruses are in circulation, growing connectivity means that local outbreaks become global very quickly. Worryingly, there is little sign that the necessary lessons about unsustainable lifestyles are being drawn.

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Lorenzo Cherin

Making a drama out of a crisis? Taking the harm out of the virus!

By Lorenzo Cherin | Thu 12th March 2020 - 10:46 am

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If we believe in anything, it is the Harm Principle of John Stuart Mill. People should be at liberty, to make their own choices, unless they do harm, to others, or to themselves, if in ways that might harm others too. The bar for the deciding of what is a harm, is set higher or lower, according to whether you are a Liberal or a Libertarian. Mill was a Liberal. He believed the state, the government, needed to exercise authority, on, for example law and order. The balance, is what is to be considered. The preamble to the constitution of this party refers to that as “between the fundamental values, of liberty, equality and community.

I have often put it this way. I am a Classical Liberal, on liberty related issues, a Social Liberal, on equality related issues, a Social Democrat, on community related issues. I am of the view that there has rarely been an issue that combines all these and more, and requires strong thinking and action, than Covid19.

I have just written an article for the Ustinov Prejudice Awareness Forum, an organisation of which I am a member and writer. The article is titled “Viral Expertise“, in which I look at greater word length and in different ways, from a more international perspective, at what I want to say here, from a UK Classical Liberal, Social Liberal and Social Democrat point of view. The importance of this issue, is such, that I would very much welcome colleagues visit the link too.

I, we, surely must subscribe to support policies that reveal and encourage, personal responsibility and public good. For all , responsible, for goodness sake, more needs to be done at home and abroad to combat this virus and act as a rehearsal for, an ongoing effort where the world performs better.

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Katharine Pindar

“Society has stopped improving”

By Katharine Pindar | Fri 28th February 2020 - 4:58 pm

That is the bleak message of Professor Sir Michael Marmot in his major new report on health inequality. Entitled ‘Health Equity in England: the Marmot Review 10 Years On’, it assesses lack of progress in the last decade, since his review in 2010 entitled ‘Fair Society, Healthy Lives’.

He writes:

Since 2010 life expectancy has stalled: this has not happened since at least 1900. If health has stopped improving it is a sign that society has stopped improving.

This damage to health has been largely unnecessary.

Health is closely linked to the conditions in which people are born, live, work and age, and inequities in power, money and resources.

He repeats the well-understood expectation that, “The more deprived the area, the shorter the life expectancy”, but finds that inequalities in life expectancy have increased. “Among women in the most deprived areas, life expectancy fell between 2010/12 and 2016-18.” For both men and women, he continues, the largest decreases in life expectancy were seen in the most deprived 10% of neighbourhoods in the North-East, and the largest increases in the least deprived 10% of neighbourhoods in London.

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Caron Lindsay

Santa Rennie delivers festive lump of coal to SNP

By Caron Lindsay | Sun 8th December 2019 - 11:23 am

It wouldn’t be an election without Willie Rennie doing something eye-catching.

And today, he took part in a Santa dash in Glasgow.

 

He placed the SNP firmly on the Naughty List for the decline in public services since they have been in government and suggested that they’d be getting a lump of coal on Christmas morning.

The only reason that the SNP want to talk about Brexit is because their domestic agenda is truly abysmal.

Hundreds of children are waiting far too long for mental health treatment, the third Police Authority chair in three years has resigned and we are falling down the international education rankings.

This Christmas the SNP deserve a lump of coal for the way they’ve mishandled these services. Our teachers, nurses and police officers are working hard day in day out but they don’t get the support they deserve from an SNP government which has independence on the brain.

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The Voice

PREVIEW: Luisa Porritt MEP’s Brexit Reality film

By The Voice | Tue 8th October 2019 - 7:47 pm

London LIb Dem MEP Luisa Porritt has made a film about the reality of Brexit and how it affects the NHS. It’ll be out later this week.

Here’s a preview:

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Ben Wōden

Is there a scientific basis for the sugar levy?

By Ben Wōden | Wed 7th August 2019 - 5:15 pm

Discussion of the sugar levy has focused on effectiveness and moral/political hazards. I want to focus on one problem that makes those redundant: Does it make scientific sense?

Not obviously.

A popular narrative: In the past, we thought obese people were that way because they lacked willpower and ate too much food, particularly fat, which obviously made you “fat” – it’s called fat! Then, scientists who had previously been silenced by the nutrition science establishment (which was in Big Sugar’s pocket) bravely spoke up and educated us on the Science!™, and now we know that it’s sugar, not fat, that makes you obese.

Reality is more complicated.

The supposedly debunked “fat = evil” paradigm was never a scientific consensus, but merely a pop-science one. It was less the work of the nutrition scientists than of sugar companies and the makers of low-fat diet products. The supposedly triumphant “sugar = evil” paradigm also has little support amongst nutrition scientists. At best, they are marginally more concerned with the impact of sugar on health than they were 50 years ago, and marginally less concerned about fat.

It isn’t hard to blow the simplistic anti-sugar position out of the water. This graph does it impressively, and should make everyone update their beliefs significantly away from thinking that sugar is a major cause of obesity, and should absolutely torpedo the simplistic “sugar = evil” position that has taken hold in many parts of the population and, seemingly, in government.

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Hannah Bettsworth

Sugar Tax is nothing more than a money spinning effort

By Hannah Bettsworth | Sun 4th August 2019 - 3:45 pm

I’ve recently lost a substantial amount of weight. That’s not a humblebrag, it’s going to be relevant, I promise. It’s taken the best part of 20 years to find something that works for me, and I’ll come back to that later. How our society discusses diet and weight was mostly to blame for why it’s taken so long. When I was a teenager, I used to voraciously read women’s magazines while keeping out of the sun during the hottest hours of the day on holiday. Oh, the diet articles in some of those. It was awful. Everything was egg whites and Ryvita. Everything.

And then, imagine, you see something like those Cancer Research adverts. You’ve already seen in the media that a bland diet is something to aspire to, a good way to lose weight, and now you’re seeing that if you’re fat you’ll die. Can you blame a teenager for coming to the conclusion that living longer on miserable food isn’t actually that great a deal? Especially when cheese, chocolate, and chips exist. (Not together, although I did go there on a dare once.)

This is where the recent party proposals on food and drink taxation come in. So, imagine you’re a young adult now, and your understanding of diet is (still) that you can have nice food and be fat or have boring food and be thin. Is a tax going to change your mind about that? Or will you just spend more of your student bursary on that chocolate bar? It’s anecdotal, but that’s how people respond to ‘sin taxes’ more generally. Denmark had a fat tax, and gave up on a proposed sugar tax, because people literally preferred to go to shop in Germany than to pay it. Just process that, for a second: people actively chose to go and shop in a different currency to avoid the kind of tax our party is proposing a consultation on.

In reality, changing the way you eat can’t be done in the short term with nudge policies. Back to what worked for me. It was the concept behind the programme ‘Cook Yourself Thin’. You can eat whatever you like. You don’t have to cut out any food groups. You certainly don’t have own a cupboard full of Ryvita and live on steamed vegetables. What you can do is make lower-calorie substitutions for the things you love. The cookbook’s got a chocolate truffle recipe in it. It even recommends swapping a cookie for Jaffa cakes.

You have to do something which is sustainable for you. Otherwise you simply will not be able to keep it off. Most people put the weight they lose back on again. A sugar tax is nothing more than a money-spinning measure: if you have the spare cash, you’ll still buy it. It won’t make you successfully change the way you live. That’s far more personal and complex than most people like to think. 

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Judith Jolly

Judith Jolly writes: Lib Dem Brexit health win in the Lords

By Judith Jolly | Thu 4th April 2019 - 11:55 am

In the midst of all the Brexit chaos, I want to take a moment to reflect on a significant and unreported win for the Liberal Democrats against the Conservative Government. 

A few months ago, a Bill was introduced into Parliament which seemed fairly uncontroversial – it’s aim was to replicate our reciprocal healthcare arrangements with other countries in the event of Brexit (either in a deal or no deal scenario). However, the Conservative Bill went much further than replicating healthcare with EU countries and was is in fact much more threatening. It opened up health deals with the whole world, one of our fears being that that in Liam Fox’s frantic attempts to sign a trade deal, the Tories were planning to put the NHS on the table as well.  As a result, Sal Brinton, Jonathan Marks and I – along with members of the Labour Party and the crossbenches spent weeks challenging the Government to limit the application of the Bill – with great success! 

One of the privileges of being members of the European Union, is that no matter where we are in the EU, our health needs are safeguarded when we need medical attention. Under EU agreements, the UK has participated in a variety of reciprocal healthcare arrangements with other countries, with the result being that all citizens and visitors are protected. 

The Liberal Democrats with cross-party support worked to amend the Bill significantly. We were clear that this Bill must only allow ministers to replace the health deals we already have with the EU, the EEA and Switzerland. 

The Bill’s scope was extraordinarily wide, and the powers included were unjustifiable. In November, the House of Lords Delegated Powers and Regulatory Reform Committee described its scope as “breath-taking”. 

The Bill had a worldwide scope, it did not just apply to EEA countries and Switzerland – countries we will need to establish healthcare arrangements with in the event of Brexit. We made sure to limit this. 

Not only did Liberal Democrats feel that worldwide powers were being snuck through in the guise of Brexit legislation and were unnecessary, but there was a genuine fear that this was an attempt to allow the NHS to be used as part of trade arrangements when creating new trade deals with countries such as the USA or China. We were witnessing the Conservative Government attempting to steal powers for ministers in Whitehall which could see them selling our NHS down the river. 

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Mark Valladares

29 November 2018 – today’s press releases (the 500 miles edition)

By Mark Valladares | Thu 29th November 2018 - 11:50 pm

Later than usual this evening, as I’ve spent the evening at a Proclaimers concert, courtesy of my lovely wife… it wasn’t 500 miles away…

  • PM leaving us in the dark on immigration
  • Cable: May “running scared” of real opposition
  • Lib Dems warn BBC that ‘Brexit debate’ may breach Ofcom code
  • Government has let down victims over second Leveson Inquiry

PM leaving us in the dark on immigration

Theresa May has today refused to confirm when the immigration white paper will be published. She was asked by Liberal Democrat MP Norman Lamb after Ministers originally promised to publish the white paper last year, but that deadline has …

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Steve Trevethan

A Basis for a National Health and Well-Being Policy?

By Steve Trevethan | Thu 4th October 2018 - 12:43 pm

The Frome Model of Enhanced Care is a GP focussed, community serving and using way of creating, assessing and delivering comprehensive health and well-being skills, services and attitudes, in, with and for a community, at a low to negative net cost. Its administration is remarkably inclusive, heterarchical or flat.

It is so attractive that it merits awareness, analysis, adoption and adaption to spread its remarkable and measured attributes.

It has delivered 5 years of medical care with social cohesion. It saves money and is more enjoyable! Somerset CCG reckons some £2 …

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Caron Lindsay

Scottish Conference passes groundbreaking policy on ME

By Caron Lindsay | Fri 14th September 2018 - 10:25 am

A year ago, Emma Walker hadn’t got round to joining the Liberal Democrats. She finally took the plunge in November 2017 and since then has made a massive impact. She’s launching a pioneering recruitment campaign (of which more in due course) and at last week’s Scottish Conference, she proposed her motion on ME. ME Action Scotland were there and tweeted about the occasion. They think it might be the first time a political party has adopted a policy on ME in the world.

Emma has sent us her proposing speech, which you can read below:

Imagine if, sitting in your seat here at conference, you suddenly begin to feel ill. Your vision blurs, you head begins to pound, and it feels like you may be having a heart attack. Maybe you collapse or you can’t remember your name. Your body has essentially crashed. Although it may take weeks. months or even years for you to receive a diagnosis, you are now one of the 21,000 people in Scotland living with M.E. For so many this is exactly how it starts. What’s more – there is no test, no cure and no proven effective treatment.

M.E, or myalgic encephalomyelitis, is an invisible illness in many ways. People who have mild to moderate M.E often look well, despite facing crippling symptoms such as bone-aching fatigue, excruciating pain and the inability to tolerate light or noise. 25% of all Scottish patients are severely affected – which means that they are house-bound or bed-bound, which in turn means that they are easy to ignore.

Only an estimated 5% of people with M.E recover fully, and some doctors question if they were misdiagnosed with other fatigue conditions. A slightly higher proportion learn to manage their symptoms and some return to work, but M.E remains in their system.

In Scotland, M.E affects more people than Parkinson’s Disease and Multiple Sclerosis combined. Yet we do not have a single M.E consultant and there is only one clinical nurse specialist, here in Fife. Shockingly, it’s the most common cause of long term school sickness absence.

This illness is a stigmatised one and it is characterised as being the fault of the patient. That they are not trying hard enough to get better, or that their belief that they are ill is the reason why they are ill. Those children who don’t attend school are often marked down as ‘refusing attendance.’ Parents have been taken to court for not sending their kids to school even though they are ill. GPs often send adult patients away telling them that everyone feels tired now and again. In fact ‘chronic fatigue syndrome’ is a term that is sometimes used for M.E. But it is so much more than that. We would rightly never limit our definition of dementia to ‘chronic forgetfulness’, so why do we limit M.E patients to one symptom?

Two pieces of research have influenced the field. The first, in 1970, was led by two psychiatrists who after simply reading case notes from an ME epidemic that had occurred in the fifties, concluded that ‘mass hysteria’ was the cause. The reason why they concluded that? “The high rates in females compared to males.”

It’s easy to shrug this off as outdated, misogynistic research but this research delegitimised ME as an illness. It created a hysteria narrative which has paved the way for the ongoing dismissal of patients. In fact throughout the 80’s and 90’s, M.E became known as ‘yuppie flu’ or ‘the lazy disease’.

In 2005 the PACE trial came along. It was another bunch of psychiatrists testing various treatments, mainly Cognitive Behavioural Therapy and Graded Exercise Therapy. The findings were published in 2011. The data suggested that 64% of patients were improved and 22% were cured by the practices of thinking differently and running around the block. Given that the vast majority of patients regard GET as harmful, doctors and patients with any understanding of M.E immediately disputed the figures, and demanded access to the raw data. It took five years, repeated Freedom of Information requests and a tribunal to eventually access the data.

Independent analysts ruled that the PACE authors’ flawed methodology had been based on their preconceived views that M.E was not a real illness.

13% of the study sample had been recorded as simultaneously sick enough to take part and already recovered! M.E patients who couldn’t walk as far as those with Class 2 heart failure were recorded as being fit enough to return to work.

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Vince Cable

Vince Cable writes…We need to catch up with our European neighbours in fighting Cancer

By Vince Cable | Fri 17th August 2018 - 11:55 am

Cancer is traumatising. It is universal, leaving no family untouched.

I saw this first-hand. Cancer took my first wife, Olympia, in 2001. To repeat what I wrote in my memoirs, that experience showed me that whatever may be said in criticism of the NHS, the capacity of the system to deliver high quality, sophisticated treatment to the acutely sick is so greatly appreciated by those who receive it.

Living with and caring for a cancer sufferer for 14 years led me to want to help others and to use my political position to do so. I campaigned subsequently for wider breast cancer screening, a screening programme for cervical cancer and the introduction of bowel cancer screening.

So many people work so hard to stop cancer: raising money with bake sales, running marathons, nagging our loved ones to eat better, drink less, stop smoking.

In the 2017/18 alone, there were donations of £192m to Cancer Research UK, a further £153m raised from events and charity shops.

But Cancer Research UK is marking the 70th anniversary of the NHS with a campaign to get the Government to commit to invest in training and employing more specialist staff to diagnose cancer early.

This is because, despite all we are doing, all the money we are raising, the UK is falling behind other European countries in the successful treatment of cancer. Olympia had diagnosis and  treatment that showed the NHS at its best. Others have been less fortunate – an IT glitch meant hundreds of thousands of women in England missed breast cancer screenings. 

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Kirsten Johnson

Does Vince look fat in this?

By Kirsten Johnson | Thu 1st March 2018 - 4:30 pm

Not a question I’ve heard, but I got your attention!

The way we view men and women is still fundamentally flawed. I imagine our Lib Dem male MPs have several suits they use in cycle, only having to choose a shirt and tie.

But our women MPs? It’s a different matter, though it shouldn’t be. I imagine hair, makeup, matching shoes, accessories and the right outfit for the right occasion are all things our women MPs think about. Why??

As a prospective parliamentary candidate, one of the women-only training sessions I attended was on image. I …

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Caron Lindsay

Sick absence figures reveal extent of strains on NHS staff as 45 million hours lost in Scotland alone

By Caron Lindsay | Wed 27th December 2017 - 12:53 pm

Last year, my husband spent 51 days in hospital. He received excellent care from compassionate and skilled staff at what was an absolutely terrifying time for us.

That experience gave us an insight into the strains and stresses that the NHS faces. The most common refrain from staff was that it was so stressful and the Winter hadn’t even started yet.

He spent a just over a month in a medical ward in our local hospital and a further three weeks in a specialist centre in our nearest city. On only one occasion in the whole 51 days did I see staff going home when they were actually supposed to. There were times when I was shocked to see the same members of staff on their 5th or even 6th 12 hour shift in a week. One day I arrived at the hospital in the afternoon to see a health care assistant who had been on night shift the previous night. Because the ward was so under-staffed, she had gone home, slept for a couple of hours and come back in for the busy stretch around lunch and dinner.

During their shifts, the nurses did not stop. They were dealing with multiple stressful situations at a time. They were stretched to the limit.

Obviously a situation like that is not sustainable. It’s going to affect people’s health in some way or another. Alex Cole-Hamilton now has evidence of that.

He revealed that more than 45 million hours have been lost by Scottish NHS boards to staff ill health during the past four years and said the immense pressure staff are under could account for rates rising.

Data obtained from health boards under the Freedom of Information Act reveals that the number of hours lost to illness increased from 11.4 million hours in 2014-15 to 13.1 million hours in 2016-17, with the number rising year on year.

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The Voice

Lamb: Government failing abysmally on GP target

By The Voice | Thu 31st August 2017 - 6:55 pm

Embed from Getty Images

Last week a study highlighted that almost a million EU workers could leave the UK after Brexit simply because they “feel less welcome and valued” in the country and in their jobs.

The impact that is going to have on our health service and the wider economy is severe.

Today, it emerged that the Government is going to spend £100 million recruiting GPs from abroad .

More than half of the Government’s 5000 targeted increase in the number of GPs are going to be recruited in this way.  Other health workers will also be sought.

As well as the £100 million, each GP who comes from abroad will cost  taxpayers £1000 per year because of the Immigration Skills Charge. Surely the sensible thing to do would be to exempt the NHS when we need these people so badly. In fact, why have it at all? It seems to me like a silly nonsense to convince the Daily Mail that we’re doing something about immigration.

Norman Lamb said that the whole thing was absurd.

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NewsHound

The Press Pack: A round-up of Lib Dem media comments – 22 August 2017

By NewsHound | Tue 22nd August 2017 - 8:18 pm

Here’s a roundup of  media comments made by Lib Dem parliamentarians and spokespeople today.

GP numbers

Norman Lamb slammed the Government for failing to deliver more GPs:

The government’s promise to recruit 5,000 more GPs by 2020 lies in tatters, with fewer GPs now than when this pledge was first made.

“The pitiful increase we have seen in recent months is nowhere near enough to cope with rising patient demand.

“This failure to recruit enough doctors will inevitably have a damaging impact on the ability of patients to access the healthcare they need.

“We are already close to breaking point, with people in many parts of the country struggling to get appointments with their GP.

“More doctors are urgently needed to guarantee a fully-staffed NHS that provides everyone with the care they need.

Swinson criticises UK support for Trump Afghanistan move

The government didn’t really get round to condemning Donald Trump’s appalling remarks in the wake of Charlottesville, but they were quick off the mark to support him sending more troops to Afghanistan. Jo Swinson said:

For once, sense seems to have prevailed in the White House.

“But to succeed in Afghanistan will require winning the hearts and minds of its people and working closely with neighbouring countries.

“On that front, Donald Trump has already done untold damage through his proposed refugee ban, Islamophobic comments and cack-handed approach to foreign affairs.

“The government’s rapid statement of support for Trump today contrasts with its failure to swiftly condemn his divisive views and actions in the past.

“Simply pouring more troops into Afghanistan will not work without a broader strategy involving careful diplomacy and redoubled efforts to build a stable government.”

Even Brussels must be tired of this waffle

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NewsHound

LibLink: Paddy Ashdown: Tories’ Royal Marine cut plays fast and loose with UK defence

By NewsHound | Sat 27th May 2017 - 12:55 pm

It makes sense that Paddy should write for the Plymouth Herald on defence given the city’s strategic importance.

He took the Government to task for cutting the Marines – about which he knows more than most people:

For more than three centuries – from Gibraltar and Trafalgar to Normandy and Afghanistan – the Royal Marines have epitomised those qualities. They have fought in more theatres and won more battles than any other British unit. In our nation’s hours of danger, they have been, as Lord St Vincent predicted in 1802, “the country’s sheet anchor”.

So the news that the Government is cutting 200 Royal Marine posts – at such a volatile time in world affairs – should concern us all. They are committing this folly in response to a crisis of their own making.

The cost of Conservative foolishness doesn’t end with the Royal Marines. They’ve cut personnel numbers, breaking their manifesto promise not to reduce the Army below 82,000. Troops on the frontline are deprived of basic equipment and combat training has been slashed, putting soldiers’ lives in greater peril. Warships sit idle at quaysides. No wonder top generals have accused the Government of “deception” over defence.

The Tories are very practised at talking tough on defence in elections. But look at the history: it’s always Tories who cut most on defence in government. It’s now clear that Mrs May will get back in because of the hopelessness of the Labour Party. But it would be very dangerous to give her a big enough majority to ignore us again.

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Caron Lindsay

WATCH: Tim Farron say he’ll reinstate student nurses’ bursaries, give nurses a pay rise and invest in NHS

By Caron Lindsay | Tue 16th May 2017 - 8:49 am

“I will not have it.” said Tim, saying that the Tories treat nurses like dirt.

He was talking to the Royal College of Nursing conference.

Watch this clip here:

He told them:

The Government’s decision to abandon bursaries for nursing students was clearly wrong.

The evidence has shown a drastic fall in the number of people applying to study nursing following this dangerously short-sighted cut.

We should be supporting more people into these vital professions – but instead this Government are putting up greater barriers.

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The Voice

Lib Dems would boost mental health care with £1 billion investment

By The Voice | Thu 11th May 2017 - 7:48 am

Liberal Democrats have stated that £1 billion of the party’s additional health funding would be spent tackling the “historic injustice” faced by people with mental ill health.

Last weekend, we unveiled a Five Point NHS and Care Recovery Plan to increase funding for health and social care services, including a penny on income tax to provide a £6 billion funding boost.

Today we are saying that £1 billion of this extra money would be ring-fenced as dedicated funding for mental health services.

This would help to deliver on 12 key priorities, including improving waiting time standards for mental health care on the NHS and providing support for pregnant women and young people suffering from mental health problems.

We would  also set out to end the inappropriate use of force against people with mental ill health, end out of area placements for mental health patients and prioritise national action to reduce the number of suicides.

Norman Lamb said:

The Liberal Democrats are committed to ending the historic injustice against people with mental ill health.

Under the Conservative government, services have been stretched to breaking point at a time when the prevalence of mental ill health appears to be rising.

Neither Labour nor the Conservatives have outlined how they will fund mental health services. We’ve made it clear that our priorities will be funded from our ambitious plan to inject £6bn a year into the NHS with an additional penny on income tax.

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NewsHound

Yesterday’s Press Releases in review: 1 May 2017

By NewsHound | Tue 2nd May 2017 - 8:07 am

It may have been a Bank Holiday, but the Press Team never rest. Here are some of the releases they sent out yesterday that aren’t covered elsewhere in our pages;

Farron: FAZ report on May’s Juncker dinner show this Govt has no clue on Brexit

According to damning reports in the German press on Theresa May’s dinner with Juncker last week, EU sources believe there is now more than 50% chance of a disorderly Brexit, while May has made clear to the European Commission she fully expects to be re-elected as Prime Minister.

Liberal Democrat Leader Tim Farron commented:

These reports blow a

…

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