Tag Archives: end of life

Good practice in palliative care

Note that this post includes end of life details which you may want to avoid.

The Assisted Dying Bill has raised questions about the quality of palliative care under the NHS. Whatever your views on assisted dying it should never be a substitute for good care at end of life.

Recently I and my family have had a positive experience of palliative care in an NHS hospital, and I am wondering how widespread this is.

My husband, Ian, died last month in Kingston Hospital. It was not unexpected – he had spent almost half of this year in hospital, six visits in total. During the year he was transferred to the Elderly Care (aka Geriatric) team, who took a refreshingly holistic approach to his multiple health conditions. However each time he was admitted his health and mobility dropped down a notch, so he eventually he became effectively bed bound.

Just before he was admitted for the last time he told me that he had had enough and it was time to go. From his hospital bed he made last minute changes to his funeral plans which he had drawn up under Covid. In fact he rather surprised some visitors by discussing it in some detail, asking them to contribute in some way.

Eventually it became clear that the treatment was no longer effective. Our sons were staying with me by that stage, and I asked if one of us could stay all night. They moved Ian into a single room so we could come and go as we pleased.

Posted in Op-eds | Also tagged and | 10 Comments

We need to talk about the end of life

We need to talk about how the UK supports its growing number of older people, and in particular about the end of life. One of the many weaknesses of British politics is that its structure does not make it easy to link related issues, But the age of retirement, pensions for the elderly, the rising proportion of the NHS budget spent on those over 70, the cost of drugs, social care, palliative care, and the debate over assisted dying, are all interlinked – above all by the pressures they all put (now and potentially) on the UK budget.

The problem of providing and funding long-term care for the elderly was grasped by (Liberal Democrat minister) Stephen Williams during the coalition government, but weakly supported by Conservatives and opposed by the Labour opposition.

Theresa May as Prime Minister tried again to address the balance between private and public funding of long-term care, only for Labour to attack it as a ‘Death Tax.’ Since then care provision has drifted and costs have risen. The dominance of the private sector has grown as many cash-strapped local authorities have sold off their care homes, as charities have retreated from the sector and private equity has bought into it – driving up what Councils have to pay and holding down carers’ wages. Enterprising private providers have built retirement villages and apartment blocks for the well-to-do, but there is little new provision for poorer retirees. Local Council budgets are now weighed down by social care costs to the exclusion of other needs.

Right-wing attacks on the size of Britain’s welfare budget have omitted to mention that nearly 60% of welfare spending now goes on pensions: 8% of GDP, up from 2% after World War 2 as life expectancy has risen. When Lloyd George introduced old-age pensions, less than half the population lived long enough to benefit. Many of us now draw our pensions for 25 years or more, and medical advances will continue to lengthen life expectancy (and increase what the NHS spends on elderly people).

Liberal Democrats in the coalition government were proud of our commitment to the ‘triple lock’ on pensions. 15 years of pensions rising faster than inflation have shrunk pensioner poverty and enriched those also benefitting from post-employment pensions (like me). The case for ending the triple lock is strong – although the temptation for opposition parties to oppose the government doing so may still be stronger. The case for increasing taxes on better-off pensioners is even stronger; we benefit from a range of financial concessions but pay a lower rate of taxation than those in employment – because we no longer pay national insurance. But there’s little chance that Reform and the Conservatives, the parties of older people, would accept the logic of any increase, faced with the wrath that the Mail and the Telegraph would unleash.

Posted in Op-eds | Also tagged , and | 13 Comments

Norman Lamb writes: The Liverpool Care Pathway and end of life care

I imagine many people had not heard of the Liverpool Care Pathway before it hit the headlines a couple of weeks ago with allegations of patients denied drugs, liquid and sustenance and families experiencing real distress. Set up in the late 1990s, its intention was to help spread elements of the hospice model of care into other settings: hospitals, care homes and people’s own homes. We all want to know that our loved ones – no matter where they are – will receive dignified and appropriate care in the last hours and days of their life.

Used properly, the Pathway ensures that individuals receive whatever treatments are right for them in their final days. The Liverpool Care Pathway itself is very clear that patients should be involved in decisions about their care if possible, and that carers and families should always be included in the decision-making process.

Posted in Op-eds | Also tagged , and | 7 Comments
Advert

Recent Comments

  • Paul Reynolds
    Making international comparisons in health spending is something of a minefield, with different definitions of 'health spending', currency changes, and the divi...
  • Tom Bailey
    Yes indeed, “We await clarification. “ Andy likes to be liked, and for the last ten years he has been “worshipped” by a select group of Manchester publ...
  • Chris Cory
    @Jana. The difference between our perspectives lies in your last sentence. “Society” and “democracy “ are not unconnected. Create a better democracy,...
  • expats
    Burnham hasn't yet been confirmed as PM but already the right wing media, and some on here, have decided that he's not up to the job... If memory serves, withi...
  • Roland
    >". If Chloe is referring to VAT on public school education then I disagree. Those who can afford £ 65,000 p.a. in fees at Eton can well afford to pay the V...