Moran: Introduce Health Data Trust to protect private medical data

Today, at their Conference, the Liberal Democrats have backed ambitious plans to safeguard private health data.

The party is calling for the establishment of a five-point ‘Health Data Charter’, which will set out key tests for whether data sharing is in the interest of the public and the NHS.

They also propose a ‘Sovereign Health Data Trust’, which would bring together experts, clinicians and patient representatives to oversee the implementation and observance of the new charter.

Commenting on the proposals, Liberal Democrat Health Spokesperson Munira Wilson MP said:

In an increasingly digital world, it’s important that we understand how companies and organisations are able to access and manage our personal data – particularly health information.

Sadly, this current Government is refusing to be honest with people about how they’re handling their personal data. Their attempts to sneak out a new GP data sharing scheme is just one example of their disregard for transparency and undermines trust.

That’s why the Liberal Democrats have set out a clear and ambitious plan on how to better handle people’s personal health data and ensure that it is used for the public good – whilst also protecting people’s privacy.

Our ‘Sovereign Health Data Trust’ will guarantee that all health data is properly handled and that it is used for the right purposes, such as developing better treatments and medicines and not just passed on or sold off to marketing and insurance firms.

By putting in place these clear safeguards, we can ensure that all parts of the NHS can access this vital information without compromising the security and privacy of those it affects.

Read more by or more about , or .
This entry was posted in News.
Advert

One Comment

  • So will the data overseen by the ‘Sovereign Health Data Trust’ be retained by the NHS or, as proposed by the current government held outside of the NHS and thus subject to different laws?

    Without a statement on where the data will reside ie. who is the data controller, the ‘Sovereign Health Data Trust’ is just words.

Post a Comment

Lib Dem Voice welcomes comments from everyone but we ask you to be polite, to be on topic and to be who you say you are. You can read our comments policy in full here. Please respect it and all readers of the site.

To have your photo next to your comment please signup your email address with Gravatar.

Your email is never published. Required fields are marked *

*
*
Please complete the name of this site, Liberal Democrat ...?

Advert



Recent Comments

  • Chris Moore
    @Tom Harney: Campaigning for re-joining the EU would enthuse some members but be a dreadful failure electorally. The point I've made too often on this board ...
  • John Bicknell
    I do think that opposition politicians are not picking up the shift in public attitudes with regards Brexit. Adrian Sanders and Paul Holmes may think it an irr...
  • Chris Moore
    What other evidence there is suggests the national polls are under-stating our position. This under-statement clearly happened from 95-97 too, where the th...
  • Peter Martin
    @ Steve, The Covid death figures you quote might be correct, so far, but they aren't the final figures. Lock-downs can buy some time for vaccines to be dev...
  • Peter Martin
    @ Expats "I must be looking at different voting polls." The polls, for the last year or so, have told a slightly different story than election ...