Tag Archives: learning disabilities

The Learning Disabilities Mortality Review Annual Report

The Learning Disabilities Mortality Review Annual Report was published recently by the Healthcare Quality Improvement Partnership. In it are harrowing statistics of people with learning disabilities dying far too young.

The report highlights the extraordinarily high incidences of preventable death. The Connor Sparrowhawk case has brought this to public attention recently: a young man with learning difficulties left in a bath unattended, he drowned whilst having an epileptic fit.

Between July 2016 and November 2017, 1311 deaths were put forward for review, often by a Learning Disability Nurse. Of those, 27% …

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#TreatMeWell campaign launched today

Mencap has launched its Treat Me Well Campaign today, calling for those with Learning Disabilities to be given reasonable adjustments in hospitals.

The facts are shocking. Every year, 1200 people with a learning disability die avoidably in hospital care.

I blogged this morning on the disgraceful state of PIP and ESA assessments, many suffered by those with learning disability. This is another aspect of how people with learning disability are not listened to, are not enabled, and are sidelined in assessments. This video gives you a good idea of the issues:

I am on the Board of the Fragile X Society. Fragile X, a genetic condition, is the leading inherited cause of learning disability. Thousands of people with Fragile X will have had the experiences show in this video.

It is very easy to make modifications. Allow extra time for appointments. Use simple language. Break explanations down into smaller, understandable sentences. Allow time for mental processing. It’s what people with learning disabilities are asking for.

The Treat Me Well report is well worth a read. Mencap’s research showed (p.25)

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Opinion: The assessment boycott and the need to protect students with disabilities

I have just started university and all is going well, except in one particular area. I have not received a single piece of work back from my university tutors since my course began. This because of a assessment boycott instigated by the University and Colleges Union (UCU). They are is a dispute with the group that represents the heads of most universities in the UK (UUK) over pensions. I am in the same boat as thousands of other university and college students in the UK. this is not only very annoying it is also very disruptive the my university education. As a student with Specific Learning Difficulties (SpLDs), this includes myself as I have Dyslexia and Dyspraxia. This is putting a massive amount of undue extra pressure on me and many others at the beginning of our university lives. I have made a brief video which explains this further:

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