Tag Archives: medicinal cannabis

Surely any person, when the quality of life for a child is on the line, would quickly come to the conclusion that paying up is the right thing to do?

Ever since she was elected as MP for Edinburgh West, Christine Jardine has been pushing the Government to give access to medicinal cannabis particularly to children who suffer from rare forms of Epilepsy for whom it can make a huge difference.

She has seen at first hand how it can transform the lives of the children who take it. In her Scotsman column this week, she talks about Murray Gray, her young constituent, now thriving and living his best life. But a couple of years ago, the story was very different:

When his mum Karen first came to me, he was a very unwell little boy who was, as I explained, constantly in and out of hospital with dozens of seizures, and his family were worried they could lose him.

Now, since being prescribed cannabis oil, he is seizure free and a happy youngster who plays football with his dad and told me everything I needed to know about dinosaurs when he visited my office. This medication has given him a life he otherwise may not have had.

The problem is that although it is possible for children to be prescribed medicinal cannabis, the NHS is only paying for three of them. This means that parents like Karen Gray are having to pay £1500 per month to ensure that their children can get the medicine that is giving them such a good quality of life.

Late last night, Christine led the first adjournment debate of the new parliamentary term in which she and others pushed minister Jo Churchill to ensure that in the short term, at least, the Government should pay for the children’s prescriptions until more clinicians are wiling to prescribe it. She outlined the problem:

When the then Home Secretary agreed that medicinal cannabis would be legal for use in the United Kingdom, I think we all believed that parents would no longer be forced to watch their children suffer, knowing that a treatment was available. What has happened since is heartbreaking. In the intervening years, they have been forced to source medication themselves, sometimes travel abroad—again at huge cost—to collect it, challenge the medical authorities and face rejection and repeated appeals for NHS prescriptions.

Surely no one in this place wants even to contemplate what it would mean to have a loved one—husband, wife, partner, brother, sister, friend or child—who had to pay for the medication they needed simply to go on with day-to-day life. Think of the diabetic without insulin or the asthmatic without an inhaler; this is no different, but it is new. With so much red tape and inflexible guidelines, too many people face being left alone, helpless and simply unable to afford life-changing treatment. In fact, since November 2018, just three NHS prescriptions have been issued for the type of medicinal cannabis that is life-transforming for these children.