Tag Archives: assisted dying

Assisted Dying is emotive – remember the key liberal principle of choice

Ultimately liberalism is about the individual and helping the individual empower themselves. To deny someone that empowerment strikes me as fundamentally wrong.

When it comes to formulating our own views on the thorny issue of assisted dying, all of us will have stories we can share of those who suffered, and each story will come with a distinct and unique perspective that the person writing or speaking about, knows on an all too personal level.

Equally, as human beings many of us will look at the same set of facts, apply our own moral codes and come to different conclusions. Assisted dying is an issue where your personal experiences will inform your view more than most issues and rightly, it is being treated as a free vote.

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Greater love has no one than this: to lay down one’s life for one’s friends

Much of the debate against assisted dying has focused on the sanctity of life, and the need to protect vulnerable people from being pressured into giving up their lives due to the burden of being caref for, and the effect this may have on those around them.

I sympathise deeply with this perspective – it is the main logical objection I had to assisted dying for a long time: a desire to protect the vulnerable – alongside my own faith which felt like it provided a moral objection to assisted dying on principle.

Yet over recent years, seeing some elderly relatives grow ever older and more infirm, I have considered the fate of one of my grandmothers, who died quite suddenly of a heart attack in her mid-70s. As part of working through the grief, it was a comfort to know that she died quickly, in the arms of a close friend (by sheer luck), at a time when she was still able to go for long walks in the mountains. She could doubtless have gone on for a few more years, but would have struggled to remain independent for much longer.

Compare this to my other grandmother, now in her late 80s. She has been almost immobile for years – and now finally has reached a stage where my ageing grandfather is no longer able to take care of her. She is confined to a care home, and I know she prays for God to take her. She wants to die, but is instead left languishing as her body slowly gives up on her. I do not think she would want the option of assisted dying. I also know that as a family we would never countenance the idea that she should feel pressured in any way to take it up.

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LibLink Christine Jardine: Why cruel laws forbidding terminally ill people from ending their life must change

Edinburgh West’s Lib Dem MP Christine Jardine has long been an advocate for a change in the law to allow assisted dying in limited circumstances. Ahead of Labour MP Kim Leadbetter introducing a Private Member’s Bill  “to allow adults who are terminally ill, subject to safeguards and protections, to request and be provided with assistance to end their own life; and for connected purposes,” Christine set out why she supports it in her Scotsman column.

Why is she supporting Kim’s Bill?

Because I recognise the widespread demand to address an inequality in the law and for legislators like myself to debate whether a change to offer that choice is needed.

I have never made any secret of my belief that the current situation is unacceptable. The law does not offer compassion and choice but instead can seem inhumane and cruel.

She cites a comprehensive inquiry by the Commons Select Committee on Health and Social Care:

It received thousands of submissions and heard hours of testimony from all sides of the debate. It also interrogated evidence from parts of the world where the laws that will be under debate here were implemented years ago.

The committee’s final report provides exactly the sort of evidence on which the upcoming debate will draw and decisions will be made when the bill comes before parliament. For me, the most significant finding was confirmation that palliative care, however good, is not always sufficient to relieve suffering. And, curiously, that care often improves after assisted dying legislation is introduced.

She concluded by saying that she didn’t feel she had the right to deny choice to people at the end of their lives:

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17 May 2024 – today’s press releases

  • Davey calls for big mental health investment on visit to Mid Dunbartonshire
  • Hunt owes an apology to millions of hardworking Brits after tax hikes
  • McArthur to host assisted dying Q&A at Scottish Liberal Democrat conference
  • Welsh Lib Dems blast Welsh Gov for failing women suffering from cancer
  • “It’s time to back our GP’s”- Mid and West Wales MS Jane Dodds

Davey calls for big mental health investment on visit to Mid Dunbartonshire

Leader of the Liberal Democrats Ed Davey has called for more support for people suffering from mental ill-health on a visit to the Milngavie and Bearsden Men’s Shed.

Ed, who is visiting Scotland for the Liberal Democrats’ Conference, will be joined by Scottish Liberal Democrat Leader Alex Cole-Hamilton and Mid Dunbartonshire candidate Susan Murray.

Ed is calling for a trebling of the tax on social media giants to raise an extra £770 million for Scotland over the next five years, to fund dedicated mental health professionals in schools and GP surgeries and cut waiting times for patients.

Trebling the Digital Services Tax would raise an extra £9.5 billion for the UK over the next five years, of which £770 million would be allocated to Scotland.

Later in the day, Ed will deliver a keynote speech at the Scottish Liberal Democrat Conference in Hamilton.

Liberal Democrat Leader Ed Davey MP said:

The SNP have been too caught up in their carousel of chaos to deal with the real and serious issues people are facing like the mental health crisis.

Right across Scotland people deserve to be supported by their local health services, for too long we have seen mental health, in particular, be neglected.

That’s why Liberal Democrats are calling for a big expansion of mental health services across Scotland, funded by the social media giants who are such a big part of the problem.

Above all, we need the ongoing melodrama from the Scottish nationalists to end so the Government can focus their time on delivering for the people of Scotland, not saving their sinking ship.

Hunt owes an apology to millions of hardworking Brits after tax hikes

Analysis by the Liberal Democrats has found 6.5 million people are being dragged into a higher tax band as a result of Conservative party budgets, including 15,000 in Jeremy Hunt’s own constituency.

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Lib Dem MPs contribute to Commons debate on assisted dying

On Monday, MPs debated a petition, supported by Esther Rantzen, aimed at changing the law to allow assisted dying. Several Lib Dem MPs contributed to the debate, all making points in favour of changing the law.

Here are their contributions in full:

Christine Jardine

I was thinking today about all those evenings when I was allowed to sit with my parents and watch “That’s Life!”, and how I could never have envisaged this moment. With all the successful campaigns in which Dame Esther Rantzen has been involved in her astonishing career, there can surely be none that has touched a nerve with the British public in so widespread a way as this one. Her involvement with this petition, which 555 people signed in my constituency alone, shows me that there is a momentum among the British public: a desire to see a national debate on the subject and for their Parliament to reflect their view, which we see in so many opinion polls nowadays. It is not a party political issue, but for the record my party, which believes in the freedom, dignity and wellbeing of individuals, has long supported the idea of a free vote in Parliament and would welcome a free vote in the next Parliament for us all to make the choice.

I find myself in the strange position where my colleague Liam McArthur is currently steering a private Member’s Bill on this issue through the Scottish Parliament. If he is successful, I would hypothetically have a choice denied to so many other people in this room—a significant choice. Another Bill that is about to be introduced to the Scottish Parliament by a Conservative MSP is about improving palliative care. Liam and Miles Briggs are working together, because the two are not mutually exclusive. We should see it as a choice between assisted dying or palliative care not for us, but for the individuals affected. They should have the choice.

The time has come when we need to recognise that there is momentum; other parts of the UK will make decisions on this shortly. I must be honest with Members and say that I do not know what decision I would make. I saw my parents die very different deaths: my father suddenly from a heart attack when very young, and my mother very slowly of a horrible asbestos-related disease. I do not know what they would have wanted. I do not know what I would want, but I do know that I want everybody to have the choice that they want. The time has come when we should recognise this petition and what it asks us to do, and look at a very narrow form of agreement to assisted dying when someone has a terminal diagnosis and has made that decision at a time when they were mentally capable of doing it, and when a medical intervention is involved. Ultimately, they get to make the last, perhaps most important and most personal decision that they could make.

Sarah Dyke

It is an honour to serve with you in the Chair, Mrs Latham. I thank the hon. Member for Gower (Tonia Antoniazzi) for bringing forward this important debate. I also thank the petitioners, including 645 in Somerton and Frome, and everyone who reached out to me ahead of the debate. Your experiences have touched me deeply, as have the experiences of hon. Members here.

One constituent wrote to me about her son, Jonathan, who died in a hospice at the age of 46. His family told me that the tragedy of his death was made so much worse by the lack of provision for assisted dying. Jonathan’s mother, Denise, gave me a quote that I think sums up today’s debate very well:

“It’s not about ending life, it’s about shortening death”.

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Sunday Show features assisted dying ahead of Liam McArthur’s Bill being published

Lib Dem MSP Liam McArthur will this week publish his bill to introduce assisted dying for people with a terminal illness in Scotland.

The Sunday Show devoted its entire programme to the issue today. First, Susie McAllister, who nursed her husband Colin who died of stomach cancer last year, spoke of how grim the last two weeks of his life was and how he wanted to end his suffering.

There have been a number of attempts to change the law in Scotland on this over the lifetime of the Parliament.  Liam said that he could now feel that the political mood was changing. The public, he said, had supported such a change for a couple of decades but now many MSP colleagues were now willing to consider his heavily safeguarded measure.

He says that he is convinced that his Bill could pass although he is not going to take anything for granted. He detects from the conversations he has had that there is now  a willingness to look at reasons to support the bill.

The ban on assisted dying at the moment is leading to too many people facing horrible, traumatic deaths that impact not just them but those that they leave behind and that is despite the very best efforts of those providing palliative care that we need to invest in and provide access to.

He explained that his Bill mirrors measures introduced elsewhere. The diagnosis, by two independent clinicians, would determine that the illness was terminal  and that the patient had capacity and were making an informed choice, having considered all the issues.

He said that this should be part of the end of life choices available for everyone.

He added that doctors would be able to conscientiously object to being involved in the process. However, he did say that the measure had improved relationships and dialogue between clinicians and patients in countries where it had been introduced.

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Liam McArthur lodges Assisted Dying Bill

Liam McArthur, MSP for Orkney,  will today lodge a final proposal in the Scottish Parliament for his Members Bill  which would enable assisted dying in Scotland if passed.

A report detailing the responses to the public consultation on the bill’s proposals will also be published. In total, 14,038 consultation responses were received – the highest number of responses received to date for a consultation on a proposed Members Bill.

The report’s findings include:

  • A clear majority of respondents, 76%, were fully supportive of the proposal, with a further 2% partially supportive.
  • Many respondents gave first-hand experiences of living with, and caring for, family, friends and patients with a terminal illness who had experienced great pain and suffered what was often described as a “bad death”.
  • The majority of respondents believe that assisted dying should be available for terminally ill people in Scotland, as it is in other parts of the world, and that a humane society should make provision to spare its dying people from unbearable pain and suffering and allow them the autonomy to legally choose to end their lives in a safe and regulated manner.
  • Many supportive respondents believe the proposal is an improvement on previous attempts to legislate for assisted dying and are fully satisfied with the proposed safeguards. Many believe that the proposal successfully balances the provision of a right to assisted death for competent terminally ill adults with a clear and appropriate set of safeguards built in to every step of the process, together with a right for health professionals involved to conscientiously object.

Liam said:

The public consultation received an overwhelming response and I am grateful to everyone who took the time to engage in this vitally important process.

It is clear that a majority of people who responded are in favour of a new assisted dying law in Scotland and that the choices we have around how we die is an issue that needs addressing.

As well as thoughtful perspectives on how an assisted dying law would work in Scotland, I have heard from dying people who would very much like to have this choice available to them as their illness progresses. People who, right now, face a series of unimaginable choices and would have peace of mind in their final months knowing that if they need it when the time comes they can have a peaceful death that is right for them.

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Liam McArthur launches consultation on Assisted Dying Bill

Orkney MSP Liam McArthur has today launched a consultation on his proposal for a Members’ Bill which would enable assisted dying for terminally ill people in Scotland.

His Bill would have safeguards, including:

  • Two doctors independently confirm the person is terminally ill, establish that the person has the mental capacity to request assisted dying,  assess that the person is making an informed decision without pressure or coercion
  • Two doctors ensure the person has been fully informed of palliative, hospice, and other care options.
  • The person signs a written declaration of their request, this is followed by a period of reflection
  • The person must administer the life-ending medication themselves; It would continue to be a criminal offence to end someone’s life directly
  • Every assisted death would be recorded and reported for safety, monitoring, and research purposes.

Liam said:

“In my time as an MSP I have heard from many dying people and grieving families who have been failed by the current blanket ban on assisted dying. I have watched other countries, such as Australia and New Zealand put new laws in place to ensure their citizens can have a peaceful and dignified death and I believe that the time is right for Scotland to look again at providing our dying people with more choice at the end of life. The consultation sets out a blueprint for how we can do this safely and compassionately.”

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WATCH: Liam McArthur talks about his Bill to legalise assisted dying

Orkney’s Lib Dem MSP this week lodged a bill in Holyrood which would enable assisted dying in Scotland. This would enable terminally ill, mentally competent adults to have an assisted death.

Here he is talking about it to the BBC.

This is a subject that is obviously emotive and needs to be handled with compassion and sensitivity. I can’t think of anyone better than Liam to do this.

He is very thoughtful and wise and will take concerns about the measure very seriously and try to address them as best he can.

I have been a supporter of assisted dying for a long time. I don’t feel that I can say to someone that they must endure unbearable suffering before their inevitable death if they don’t have to. I went to a Dignity in Dying event at the start of the Holyrood campaign where Prue Leith described how horrendous it was for her brother David who died in great pain because of a brain tumour. At that same event, sisters described the intolerable suffering which preceded their mum’s death from oesophageal cancer. I really think that people should be able to choose a more controlled, dignified death.

I do get, though, that we need to make sure that disabled people, who are already marginalised don’t feel even more so. Labour MSP Pam Duncan-Glancy had this to say:

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Assisted Dying

The Party has a proud record of taking the lead in Parliament on socially liberal issues like abortion and same-sex marriage, and we should be doing the same on assisted dying. It is now eight years since Conference passed a motion in favour of this, but I have seen no sign of any follow-up action. Ed Davey, our new Leader, has made great play with the need to listen to the public and act on their concerns. Well, assisted dying is a case in point. The public’s support for changing the law to permit assisted dying has been rising steadily, and in the last five years, polls have shown it at over 80%. Let’s listen to that.

It is not just that the public is massively supportive. The main opposition has also been crumbling. The medical profession is coming round, with Paul Cosford, the former medical director of Public Health England, is the latest to show support, and on the religious front two former Archbishops, George Carey and Desmond Tutu, are among those who have spoken out in favour. The recent book ‘Last Rights’ has described in detail the kind of deaths that people have to face in the absence of law change – over 6,000 people a year are dying in pain and without dignity. How long are we going to go on condemning people to suffer unnecessarily like this? Palliative care has made great advances but cannot help in every case. I have been assisting the campaign personally for nearly ten years, spurred on by my wife’s Parkinson’s disease.

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The most fundamental of human rights

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I am sure that most of you will have been shocked and distressed by recent reports that, during lockdown, Many care homes were ordered to place “Do not resuscitate” orders on all their residents. In many cases, there was no discussion of this with either the residents themselves or their families. About half of these were care homes for the elderly. The other half were for younger adults with learning difficulties or other disabilities.

It is hard to find words for this violation of the most fundamental of human rights – the right to life. We thought we were going into lockdown to protect the most vulnerable, when in reality, there seems to have been a policy of leaving the most vulnerable to die. It seems to have been decided that the lives of elderly and disabled people somehow mattered less than those of the young, or of people free of disabilities.

Even if it could be argued that very frail elderly people often would not benefit from resuscitation, or from treatments like ventilation, this would not apply to the younger, healthy people, who happened to have a learning difficulty, who were also being condemned to die.

This horrifying situation was not confined to the care home sector. Some GP practices put pressure on elderly people, people with certain health conditions, disabled people, and in some cases autistic people, to sign “Do not resuscitate” forms for themselves, and agree that an ambulance should not be called if they were to become ill with Coronavirus. Imagine the feelings of these people, on being asked to agree that their lives were not worth saving. In many cases these were people living alone, unable to see friends and family due to lockdown, and now finding that the health service was apparently turning its back on them. They must have felt utterly abandoned. Many must have despaired. Meanwhile, their neighbours “clapped the carers” every Thursday.
How dare anyone suggest that the life of an elderly, disabled or autistic person is of less value than that of a young, able bodied, neurotypical person?

I hope every liberal believes that every life is of equal value. We must never forget that the most fundamental of human rights is the right to life itself.

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The will of the people, the “Right to Die.”

This is the last of a series of three posts about the right to die, end of life care and its legislation. The first post can be seen here and the second one can be seen here.

Since we all are going to die and see loved ones die, everyone has a vested interest in the country’s approach to death in the 21st century. Many believe that choosing the manner and timing of your own death is a fundamental human right. 80-90 per cent of the UK’s population believes assisted dying should be legalised for those suffering from terminal illnesses, and this is a view held equally strongly by those with “left wing” or “right wing” views.

The Liberal Democrats have long supported legislation on the “Right to Die”, but the gap between our elected politicians as a whole and the public is huge. The last attempt at legislation to legalise assistance for those who are terminally ill and likely to die within six months, was defeated in the House of Commons by 212 votes.

Some of the concerns MPs have are around vulnerable people. People who may feel under pressure to end their lives so as not to be a burden to family, caregivers or a society short of resources, or that people may not have been adequately supported and so may make an ill informed decision. But when peoples fears are addressed and adequate support put in place the request of someone to end their life may not be made again, and in most cases it is “possible to achieve a dignified and peaceful death.”

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Dying, vulnerable people need the law to protect them

This is the first of a series of three posts about the right to die, end of life care and its legislation.

Assisting someone to take their own life is punishable by up to 14 years in prison. In Sept. 2019 yet another case of assisted suicide hit the news: Mavis Eccleston was cleared of manslaughter and murder after admitting to giving her husband an overdose of medicine being used to treat the pain of his terminal cancer. The Crown Prosecution Service said “There was sufficient evidence to provide a realistic prospect of conviction… it was in the public interest to prosecute” and had a duty to act. After a trial lasting two weeks, the jury took just four hours to clear Mavis of the charges. The decision was unanimous.

Guidelines published by the Director of Public Prosecutions say people acting wholly out of compassion could avoid prosecution for helping people end their lives, because the assistant has good motives. The role of DPP guidelines is to provide certainty where there is a legal gap. However we must have concerns about the democratic legitimacy of the DPP, setting out policy in this area and thus furtively, rewriting the law. This is a slippery slope. This doesn’t preserve life. It cannot properly protect vulnerable individuals because investigation of the circumstances and consideration of vulnerability only happen after death.

The former Lord Chancellor, Charles Falconer, who chaired the Commission on Assisted Dying said:

The law on assisted dying in Britain is an incoherent, cruel, hypocritical mess.

Guidelines and precedents have been set, and so the time has come to more openly adopt a position that honestly recognises the issues, and to restore a measure of cohesion to the law.

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24-26 January 2020 – the (long) weekend’s press releases

  • Liberal Democrats welcome Citizens’ Assembly
  • Liberal Democrats: Sadiq Khan’s mass surveillance roll-out unacceptable
  • Ministers must explain soaring cost of HS2 to Parliament
  • Government must review assisted dying laws

Liberal Democrats welcome Citizens’ Assembly

Ahead of the first meeting of the Citizens’ Assembly on climate change, set up by House of Commons Select Committees last year, Liberal Democrat Climate Action Spokesperson Wera Hobhouse said:

The climate crisis is doing irreversible damage to our planet. The UK must cut its emissions to net-zero, be it by improving how we heat our homes or cutting emissions from flying.

This Citizens’ Assembly could help the government take the difficult decisions

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Christine Jardine leads MPs’ debate on assisted dying – most speakers are in favour

On Thursday Christine Jardine MP led a Westminster Hall debate of MPs on the subject of the Assisted Dying Law. This was a debate which she brought about.

You can read the debate in full on the Hansard website, and below are Christine’s opening and closing contributions, replete with interventions from other MPs.

Christine has written an article in The Times (£) on the subject and the Westminster Hall debate was covered on BBC Radio 4’s Today in Parliament programme (starts at 15:22) – which included an interview on the subject with Christine.

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Vince Cable: Why I changed my mind on assisted dying

In the final of our three MPs’ speeches in favour of assisted dying, Vince Cable explains what prompted him to change his mind on the issue.

I thank the hon. Member for Grantham and Stamford (Nick Boles), my right hon. Friend the Member for North Norfolk (Norman Lamb) and others for giving us the opportunity to debate this subject. Members have spoken movingly and from experience about their views.​

I am someone whose views have radically changed. Until recently I was a vehement opponent of assisted dying, but I have changed my views and think I should explain why. That change is partly based on an understanding of why I was previously opposed to it, which was due to my own personal experiences. Two of those experiences were relevant, and I think they will resonate with many Members of the House.

One experience concerned my elderly mother who descended, as many do, into confusion and dementia, compounded by mental illness and depression. One week she would say, “Please, please end my life. I am a burden. I want to go”, but a few weeks later she would be enjoying the simple pleasures of life. I could see all too clearly that under a permissive system of assisted dying, people like my late mother would be extremely vulnerable.

My conviction at that time that assisted dying was the wrong route was compounded by my experience with my late wife, who contracted breast cancer and had a very long illness. She eventually died at home with good palliative care, surrounded by a loving family. She was vehemently opposed to assisted dying and wanted to live her life to the full. I guess that I took the view that that was her choice but should also be everybody’s choice.

I came to realise, however, that there are very different situations we need to understand. One thing on my conscience is that in my 20 years as an MP, two constituents came to see me to request help and political support for a campaign in the High Court to be allowed to die through assisted dying and, although I expressed sympathy, as one would expect, I declined to support their campaign. I was very wrong to do so. Both suffered from motor neurone disease, and I think many of us know of such cases. One has surfaced today: a man called Richard Selley in Perth, in Scotland, who is fighting for the right to assisted dying. I think we all know the nature of this condition. Although some people live with it, Professor Hawking being a famous example, in most cases it involves the physical degeneration of all bodily functions combined with absolute clarity of mind and very great suffering. It seems to me that we should consider the position of those living with it and similar conditions.

The argument that is deployed against doing so is that hard cases make bad law. That was quite well summarised by Lord Sumption, who gave the Reith lectures a few years ago, when he said assisted dying should be criminalised but that the criminal law should be broken. That is a somewhat strange way of putting it, but essentially what I think he was saying was that we should keep the law but turn a blind eye to exceptions and treat them compassionately.

I have thought about that argument, but it seems to me that the evidence is very strongly against it for a variety of reasons. However sensitive the Director of Public Prosecutions or the police might be—I am sure they are; the 2015 guidance is very humane—the sheer process of going through a criminal investigation and a caution is deeply traumatic, and probably the most difficult period of any person’s life. It is probably also difficult for the police who have to implement it.

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Grey areas: Norman Lamb describes the nightmare ordeal of a family over Mum’s death

This weekend we are publishing the speeches of Lib Dem MPs in the recent debate on assisted dying.

Norman Lamb described at length the nightmare a family went through as doctors and police reacted to their terminally ill mother’s attempt at suicide.

It brings home the reality of the issues people face.

Should we really be putting grieving relatives through police interrogations? As Norman says, this family’s experience shows the need for a change in the law.

It was a pleasure to join the hon. Member for Grantham and Stamford (Nick Boles) in applying for this debate. I want to use my time to tell the stories of two constituents. The first is Vonnie Daykin, who has come to Parliament today to hear the debate. She has talked about how she witnessed her uncle and her father die of Parkinson’s and her mother die of motor neurone disease. She says that her mother went through living hell, but ultimately had no choice and was forced to suffer “until the bitter end”.

I also want to spend a little time quoting my constituent, Zoe Marley. Her words deserve to be heard in Parliament, so if I may, I will quote from an email that she sent me. She says:

“In January 2018 my mum Judith Marley was diagnosed with an aggressive cancer…She had nursed her own mother with cancer and had seen numerous ‘bad’ deaths. From the outset, she announced that she would not let the cancer do its worst, but would formulate a plan to escape the terror. No matter how marvellous the palliative care, she didn’t want it.”

That is her right, incidentally.

“She was a very private person; her death should have been a private affair instead of the circus that it became. On a warm July afternoon in 2018, she took a framed picture of her mum, a bottle of Drambuie and approximately 70 sleeping pills into the garden and in this most cherished place, she proceeded to attempt to take her life.”

After some considerable time, her daughter found her there; she had not died and then started to come round. Zoe was then placed into an impossibly invidious position, not knowing whether to call an ambulance. Her mother had already given her lasting power of attorney and did not want resuscitation—her legal right. Ultimately, however, because of the impossible situation that her daughter was in, she had to call an ambulance. Zoe says:

“Her wishes to stay at home and not be admitted to hospital were my priority as her LPA. But was I technically assisting her suicide? My lack of action could be considered supporting a suicide. I was terrified of the consequences of my inactivity. We waited but no change, the day was cooling down and I wanted her to be comfortable.”

In the end, an ambulance was called, and a doctor also attended.

Zoe writes:

“The doctor was unsympathetic. He said he had spoken to an on-call psychiatrist and that he was within his rights to call the police so they could take her to hospital. He was threatening and arrogant, telling me if Mum died there would be a police investigation and she would have a full autopsy. It all made me sick to my stomach. All this time my beautiful Mum laid outside while my ​daughter held her hand. I had somehow found myself embroiled with a medical team that had no understanding of how to interpret the law. The doctor called the police and three officers arrived. I have never had the police come to my door. It was demeaning and frightening. Once again I showed them my Mum’s paperwork and begged them to bring her inside. They seemed unsure of what to do, the expression ‘grey area’ was used a lot.”

To answer the point of the hon. Member for Cleethorpes (Martin Vickers), grey areas cause enormous distress, as in this case. Zoe continues:

“After much confusion they insisted they take Mum to hospital. I was now indignant and focused on what Mum wanted. I made it very clear I would obstruct them. I felt everyone was ‘trying to cover their backs’ which meant disregarding my Mum’s wishes.

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Christine Jardine: MPs have a free vote on assisted dying. We should not deny choice to those who deserve it

Last week the Commons debated assisted dying. In a moving debate, MPs outlined some heartbreaking situations. Three of our MPs, Norman Lamb, Christine Jardine and Vince Cable, spoke. We’ll be publishing their speeches this weekend.

Christine Jardine outlined one particular irony: MPs have a choice that they don’t extend to those who are in the situation where they need it.

This is undoubtedly a hugely emotive and controversial subject, but I thank the hon. Member for Grantham and Stamford (Nick Boles) and my right hon. Friend the Member for North Norfolk (Norman Lamb) for giving us the opportunity to discuss it. I am convinced that I have not just a right, but a duty to work for changes in the law that will make it possible for people to have the individual right to choose their own time and manner of death. I am talking about people who, otherwise, will face a situation that will soon be very painful and that will also cause a great deal of stress to their family members. I have been lucky: I have not had to go through the sort of experience that we have heard about from other Members of the House.

Two years ago, I had a conversation with my husband about a friend who, we had just heard, had been given a terminal diagnosis. It was January. We said, “This year will be difficult. Christmas will be difficult. We will have to think about how to deal with it, but it will not be easy for him or for his family.” The irony of that conversation has never left me, because neither my husband nor the friend actually lived until Christmas, but the difference was that my husband died very suddenly. Our friend went through a long, painful, lingering death. If there had been a way that he could have been spared that, I would have wanted him to be offered that choice. There is also an irony in the fact that had I had the choice for my husband, I would have chosen the death that he had, rather than the one that our friend had.

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Vince: I have changed my mind on assisted dying

Vince Cable has become the first party leader to come out in favour of the legalisation of assisted dying.

We don’t often link to the Daily Mail, but will make an exception for Vince’s incredibly moving article. 

He talked about losing both his mother and his first wife and how he at that point was opposed to assisted dying becoming legal.

He says he has changed his mind after listening to the concerns of constituents.

And he describes how he and his wife Rachel have discussed the issue:

We both agreed that if ‘assisted dying’ were legal, we could not allow the other to suffer intolerable pain should they wish to bring it to an end.

Vince  has spoken before about his mother’s breakdown as a result of Post Natal Depression and how adult education played a huge part in her recovery. In later life, though, she suffered mental illl health again.

When I visited her towards the end of her life she sometimes begged to die, to be released from her unhappy state; but on other occasions she insisted on her love of life; simple pleasures like a walk in the park, and by the river.

Without self-worth, however, she was obsessed about being a ‘burden’. I could see all too clearly that, in a permissive regime for assisted dying, fragile and muddled people like my mother would easily be persuaded to sign up.

When his wife Olympia died from Breast Cancer in 2001, she would never have considered assisted dying:

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Assisted dying – an expression of individual freedom

This resolution proposed by PLC, Partido Liberal de Chile and supported by D66 of Netherlands and LIBG Liberal International British Group was hotly debated during the Human Rights Committee session at the 200th Executive Committee meeting of Liberal International held at the headquarters of the Free Democratic Party of Germany in Berlin this weekend.

Despite strong reservations from several delegates to the original wording and a proposal to refer back, a ŷlast minute re-write during the session which addressed all of the reservations expressed led to success, with a large majority of delegates voting for the resolution during the following …

Posted in Europe / International and News | Also tagged | 7 Comments

Alex speaks out on assisted dying

Alex Cole-Hamilton, our Lib Dem MSP for Edinburgh Western, wrote an article for the Edinburgh Evening News on Tuesday, giving his personal views on assisted dying.

It opens

We lost my father-in-law shortly before Easter. He passed in the comfort of his home surrounded by love and light and in the arms of his family. It was an end to aspire to. Such a passing is not afforded to everyone, however, and I grieve for those families who have seen their loved ones struggle in pain, indignity and distress for protracted periods before the end. Public policy change around end of life care remains one of the hottest political potatoes out there and to my mind we’re still not getting it right.

Alex feels passionately that

If we reach the limit of human endurance, if the pain goes beyond the grasp of palliative care; we should have the human right to say: “this far and no further” and be assisted, with proper safeguards to take such steps as necessary to quit this life in dignity.

He goes on to say

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Norman Lamb MP writes…Why I support assisted dying

You will have probably heard by now that the Assisted Dying Bill was defeated in Parliament this afternoon by a margin of about three to one.

The scale of victory for opponents of the Bill was almost exactly the same as when it was last debated in 1997. This is remarkable, given the degree of public support for reform – over 80% according to a poll earlier this year. I respect the deeply held convictions of those who oppose assisted dying but I can’t help but reflect on how out of step with public mood Parliament appears to be on this issue of such profound importance.  And before anyone reacts – yes I understand we have a representative democracy and I know that it cuts both ways. I am deeply relieved that Parliament has always rejected hanging!

I used to oppose assisted dying. I shared the concerns of many people about the risk this could pose to vulnerable individuals under pressure from greedy relatives. However, in recent years my views have been challenged.

During my time as a Health Minister and my years as a Member of Parliament I have heard the testimonies of people with terminal conditions, often in great pain, who wanted the right to end their suffering with dignity and in a way of their choosing. Listening to these stories has forced me to confront the principles at stake.

Ultimately, the question surely is: should it be the individual or the state who decides? For me, as a Liberal, there can be no doubt. I know that I would want the right to decide for myself, so I cannot deny it to others.

As Care Minister, I was completely focused on improving end of life care, an area of medicine too often neglected in the past. I had to address really serious concerns about how the Liverpool Care Pathway had been applied in many hospitals as a one size fits all protocol.

What has emerged from the review I initiated is a new approach which focuses completely on the priorities and needs of the individual patient. There is a strong consensus now that, at the end of life, the patient’s wishes come first – on resuscitation, on where to die and so on. How odd then, that when it comes to the most profound question of all, we deny the person the right to decide.

The current legal situation is not just a messy compromise; it is cruel and wrong. We put families into the most invidious position. If they act out of compassion in helping a loved one to die, they still face having their home declared a ‘crime scene’ and then face an investigation which could go on for months, interfering horribly with the process of grieving. The DPP guidelines talk about ‘the suspect’. Surely we can’t put people through this.

Some people, of course, travel to another country to end their life, if they can afford it. But even that is, surely, grotesque – expecting a dying person to travel to an alien clinic in another country, when they could be at home with loved ones. For those who can’t afford to travel, they face the dreadful choice of soldiering on, perhaps in great pain and loss of dignity – or commit suicide. A Labour MP today wrote of how his own father ended his life in this way. Surely, again, this is intolerable.

Another concern people often raise is that giving people the right to die would somehow distract from, or conflict with, steps to ensure excellent palliative care. But good palliative care and assisted dying are in no way incompatible. It is up to Parliament to ensure that we invest enough in palliative care. In Oregon, where assisted dying has been lawful for many years, there is better access to specialist palliative care than in most other states.

John Stuart Mill wrote: “The only part of the conduct of anyone, for which he is amenable to society, is that which concerns others. In the part which merely concerns himself, his independence is, of right, absolute. Over himself, over his own body and mind, the individual is sovereign.”

I will keep campaigning for that sovereignty to be respected at the end of life, despite the defeat in Parliament today.

Posted in News and Op-eds | 24 Comments

Norman Lamb MP writes: I want us to lead the way in Parliament to allow assisted dying

For many years, I opposed attempts to legalise assisted dying.  I had concerns, shared by many, that the risk to the most vulnerable individuals outweighed the benefits.  Equally, I respect those with deeply held religious concerns.
 
But my views have been challenged in recent years. As an MP and in my role in the last Parliament as a health minister, I have spoken to many terminally ill patients, and the families of those who suffered slow deaths in great pain.
 
So many of them were convinced, when someone is suffering intolerably, and when they are reaching the end of their life, they should be allowed to end their suffering with dignity, and with the support of those closest to them.
 
These testimonies have forced me to think again. Would I want the right to decide for myself, when faced with terminal illness, when I wished to die? And would I want it for loved ones? The answer is unequivocally, yes. 
Posted in Op-eds | Also tagged and | 31 Comments

Lord Avebury’s personal story – why he wants the option of assisted dying

eric aveburyLiberal Democrat peer Eric Avebury, a great friend of this site, has been talking to the Dignity in Dying website about why he feels so strongly that assisted dying should be an option, to help him avoid a “very terrible” death from his blood cancer.

I am committed to campaigning for terminally ill, mentally competent people to have the right to an assisted death. I have an incurable disease, a form of blood cancer called myelofibrosis, where the inside of the bone marrow turns to fibre and it no longer produces blood, so you suffocate. I have been told that it can be very terrible in the last stages.

It is a debate that the public have been engaging in for many years and finally Parliament has decided to catch up. I have had my own conversations with my family. My wife comes to all my consultations and we have discussed assisted dying. She knows that the ideal would be to have a peaceful death at home and for palliative care to deal with any serious pain, but if it doesn’t she would respect my decision to have an assisted death – assuming the Bill is passed by then. I am not keen on the idea of travelling to Switzerland and we haven’t discussed that option. My four children know my views and don’t object to them either.

I obviously have a personal stake in the Bill and the future of the assisted dying campaign. Currently I am not in the latter stages of my illness and I am very hopeful that this year will not be my last.

I am confident that, when this time comes for me, assisted dying for terminally ill people will be a legal right in the UK, and I will be able to plan the death that I want.

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Opinion: Assisted dying

LilyThe Assisted Dying Bill returns to the House of Lords this week following high-profile interventions by the Archbishop of Canterbury, Justin Welby , and his predecessor-but-one, George Carey.

While the bill may receive a second reading in the Lords, it stands little chance of progressing in the Commons. This is because key MPs, including David Cameron and Nick Clegg, are firmly against it. I respect the sincerity of Cameron and Clegg’s concerns, but I also believe their stated views show that they have not approached the issue in the right way. It is vital that any debate in the commons is open and honest, and not skewed by prejudice or emotion. MPs could do worse than begin the debate by considering the views of the two archbishops, which actually advanced the quality of the public discourse quite significantly.

Posted in Op-eds | 17 Comments

Opinion: Choose Life

The spring conference at Brighton 2012 proposed a motion (F20) on Medically Assisted Dying which was carried and I was the only one who spoke against it. Now Lord Falconer has introduced a Bill on Assisted Dying for which I feel compelled to make a case against. On the wall at Lib Dem head office it say “The Liberal Democrats exist to build and safeguard a fair, free and open society, in which we seek to balance the fundamental values of liberty, equality and community, and in which no one shall be enslaved by poverty, ignorance or conformity“.The motion and …

Posted in Op-eds | 23 Comments

3 facts about assisted dying (or ‘it’s not all about Switzerland you know’)

The debate around legalising assisted dying seems increasingly to centre on the case of suicide tourism; whether people should ‘have to’ travel to clinics in Switzerland where they can legally end their lives. Whilst this is undoubtedly an important trend, it is merely a side show to the real issue and masks three important facts about assisted dying.

1 – Very few people travel to Switzerland to end their lives.

In the last 10 years less than 200 people have travelled to Switzerland to end their lives. That’s quite a lot. However, it’s far fewer than the estimated 500

Posted in Op-eds | 32 Comments

Eric Avebury writes: Assisted dying

Over the last 20 years I have had a few close shaves that made me think about death, including a quadruple bypass, a burst colon, lung cancer and an aortic aneurysm. None of these were conditions that involved more than temporary pain and a fairly low risk, though as Hamlet’s mother says:

‘All that lives must die
Passing through nature to eternity.’

But then in August 2011 I was diagnosed with myelofibrosis, an incurable form of blood cancer, that ultimately leads to various unpleasant and painful symptoms, needing frequent blood transfusions to prevent the arteries seizing up with fibres. Would I then want …

Posted in Op-eds | 52 Comments
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